Hello .just introducing myself .first time on here x
Well what a great site this is. You have just bucked me right up !!!
All you said was that piece about Letrozole and I have renewed faith.
This is why these platforms that us normal people can speak on are vitally important. I am always thinking will they or won't they be working. So when you hear of positivity about a drug that you aractually taking it buzzes you up again.
Brilliant! I was bucking myself up as I wrote that, I think we can lose sight of positives when we are in the middle of things. I absolutely hate being told to be positive when I’m fed up but reading about successes does help me. And there really are plenty of them x
Over in the secondary breast cancer forum Noswda1 started a thread for positive stories - I am a self confessed techno phobe so would not even attempt to paste the thread. Please check it our though
This may well be the link to the Positive Stories thread IamLyn mentions ?
It is in the Secondary Breast Cancer Group - Which may well be worth joining if your bone secondaries are breast cancer related / specific ?
As for Letrozole only, there has been several ladies who for whatever reasons couldn't have chemo and Letrozole was used to shrink their tumours down successfully prior to surgery - As a standalone drug it is often underestimated even when it feels like it has caused your joints have aged 20 years :-/
Sorry to see you back here Nickyd1 recognise your avatar from way back
Take care, G n' J
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Don't know how to tag your name on a response but yes that is indeed the link thank you.
Dreamthief I remembered you too! You are always very helpful. Sorry to see you’re here too, how’s Jackie?
Hello all im Cazzy im 32 diagnosed with breasr csnxsd secondary to bones ar same time on lethzole zoladsx snd had mt second denasaub lsst month dje to calcium low. Last scan showed shrinkage but im gdffinf referred radiotherapy ss gof severe bsxk pain new mri ss gif crjsbed vertebrae due cancer ss spinal surgeon requested it xxx
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