Bone, secondary cancer

Secondary bone cancer is cancer that has spread to the bones from a primary cancer somewhere else in the body. This group is for people affected by secondary bone cancer to share experiences and get support.

Worsening pain during chemo

min.b
Posted by

Hi there, my dad has secondary bone mets (L5 and T11) He is being treated with GemCis chemo for Bile Duct Cancer, although they aren't certain that this is his primary because his biopsy was not conclusive. It has also spread to his liver and he has a melanoma on his head. We know his treatment is palliative but he is really struggling with the pain.

He has had 2 chemo sessions and a week off, tomorrow he starts his second cycle. The pain in his back has got significantly worse this week, we have told his consultant who didn't offer an opinion. Can anyone tell me if this means that his chemo isn't working? Surely his pain wouldn't be getting worse if it was.   

I would be really grateful if anyone has any experience or advice they could share, good or bad I would rather be prepared.

Thanks in advance x

Peebee2
Posted by

Hi there, glad you have found us, 

The pain you’re dad is in isn’t a sign the chemo isn’t working but I hope someone may jump on with some more information regarding the bile duct cancer and liver, but please call Macmillan as ask for a visit at home for your dad, they are brilliant and they can prescribe pain relief if needed, he can have visits as often as he needs, they also organised occupational health to come out and they can arrange grabbers to pick things up, stools for the shower, they also arranged to have a recliner chair to help making sitting easier. Please don’t suffer in silence, Macmillan have done so much for me, I suffer from secondary breast cancer to my spine and after some radiotherapy to relieve the pain I had a flare up and was in agony as the cancer in my spine caused fractures that had me screaming with pain, and within a week of having them come to see me I was up and walking and leading a full life again, I think maybe if your dad has his pain sorted he will be a different person. 

sending you love, Jo xx 

min.b
Posted by

Jo

Thank you so much for your reply and for your helpful advice. I will definitely look into getting someone from Macmillan round to see him. He's feeling so low from the constant and increasing pain, its awful for him. But its great to hear that it doesn't necessarily have to be that way.

I am glad to hear of your improvement, I hope it continues for you.

Thanks again and wishing you lots of luck for the future

Michelle x

Peebee2
Posted by

Happy to help, and I hope they sort your dad’s pain out, I’m sure it will benefit him. 

Thanks for your good wishes, Jo xx