Bone, secondary cancer

Secondary bone cancer is cancer that has spread to the bones from a primary cancer somewhere else in the body. This group is for people affected by secondary bone cancer to share experiences and get support.

Bone Mets

Bluesky13
Posted by

Hello all

I just want to ask what is your experience of the treatments for bone Mets such a xgeva, zometa etc, please?

Any information will be much appreciated.

Regards

Bluesky13

Lass
Posted by

Hey Bluesky,

I'm afraid I've no experience of those drugs as my type of cancer is treated differently, even if it's in the bones.

However I just wanted to say hello and welcome you to the group.

Lass

xx

Hope is important because it can make the present moment less difficult to bear. If we believe that tomorrow will be better, we can bear a hardship today. - Thich Nhat Hanh

Bluesky13
Posted by

Hi Lass

Thanks for your welcome message.

Regards 

Jo300
Posted by

Hi Bluesky

I have just joined this group in the hope of finding an answer to a Zometa question. I’ve been on a monthly infusion for two and a half years for kidney met in my clavicle. It seems to be working well for me and I’ve had some bone regrowth around a tumour that had broken through .

i experienced the flu like symptoms and bone pain when I first had it, each time for a few days after the infusion, for the first few months. I suddenly realised around 5 to 6 months in that all of the side effects had just gone and now I have it every month without even thinking about it. For me the infusion itself is only 15 minutes and I’m normally in and out in about 40 minutes by the time my obs are done my line goes in it runs and the line comes out again  

hope that’s useful!

Jo
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