Bone, secondary cancer

Secondary bone cancer is cancer that has spread to the bones from a primary cancer somewhere else in the body. This group is for people affected by secondary bone cancer to share experiences and get support.

Bone cancer pain

lennohinko1
Posted by

Hi

I wonder if someone has any advice.  My husband has Stage 4 prostate cancer with mets to his shoulder, spine, pelvis and hip.  He's been on several chemo but has castration resistant pc.

He's had radio on his shoulder (and now has much more mobility) and on his spine, hip and pelvis.  Whilst his mobility is increasing (he had it about 2 months ago), he still has a constant ache which affects his mobility and sleeping.  He's on oxy slow release and oxy liquid, along with pregabalin and paracetamol.   We are limited in things he can take as he's also on warfarin and can't come off this.

Our Palliative OT has been great and supplied a riser/recliner chair and air mattress which have really helped, but we are looking to something to help reduce this constant ache.  The PN yesterday seemed quite happy that his pain had reduced from a  10 to a 1 or 2, but as we tried to explain, if you have a severe pain at a 10, it can be reduced by pain relief, but a continuous ache which doesn't relent can be worse. Not sure that she actually understood!

If anyone has suggestions on things they have tried which have worked, we'd be grateful.

Thanks!!

latchbrook
Posted by

Hi and a very warm welcome to the online community

I'm sorry to hear about the pain that your husband is in. It must be very difficult for you both. Although I haven't had this problem I noticed that your post had gone unanswered. 

Could I suggest that you post your question in ask a nurse and one of the specialist cancer nurses will respond within 2 working days. Alternatively, you could give the Macmillan Support Line a call on 0808 808 0000 and speak to one of the nurses on there. It's free to call and available daily from 8am to 9pm.

I do hope you can get your husband's pain relief sorted soon.

x

 "Never regret a day in your life, good days give you happiness, bad days give you experience"

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Peebee2
Posted by

I was also in pain after radiotherapy for some 6 weeks... my oncologist got a Macmillan nurse onboard to help me with my pain and she tweaked all my meds and within a few days I was up and about I cried as I was so happy. Ask for one to come and see your husband it may just help xx