i ginished treatment for breast cancer at the end of December 2017. Had my first annual mammogram in October and all good. At the weekend i was in A&E for chest pains, following tests such as ECG, Chest XRay, blood tests, gas blood test and CT Scan, was diagnosed with pleurisy. However I was also informed that the CT scan had shown a few concerns, one of which showed that some areas of bones of my rib cage were not as thick as other areas and as such I would need an Isotope bone scan to understand why. The A&E Dr said it could be due to the Tamoxifen or that my cancer had spread tomthis area, now other reason was given. I am now waiting for an appointment to come through, but I am so worried that its cancer. i can find nothing on the internet to give me any information, so Imwonder if anyone hee can help. Thank you Amanda
I'm really sorry to read that you're worried that your breast cancer might have spread. I can understand what a scary time this must be for you.
Although I don't have the experience you're after I noticed that your post had gone unanswered. It could be that no one here has this experience and that is why you haven't had a reply. However, by replying to you it will nudge your post back to the top of the page so if it was missed by someone when you first posted they might see it this time.
While you're waiting for replies you could post your question in ask a nurse where one of the specialist nurses will aim to get back to you within 2 working days.
I really hope that there is another reason for what was seen on the CT scan.
Hi Latchbrook, thank you very much indeed for kind response. I having done some research and based on this and the A&E Dr’s information, I am convinced it has spread. The radiographers who read my CT scan would have seen it, and has probably seen it, if it was osteoporosis they would have ordered a Dexa Scan, the Bone scan does not pick up Osteoporosis. Also to have Arthritis or osteoporosis in the ribs is extremely rare. I am very worried because I dont know if its spread to other organs and having looked at the treatment for bone cancer Its made me worry more. I am also nervous about who will give me the news once the scan results are in. Will it be my original breast Consultant/surgeon (who I havent seen since September 2017, or an oncology Dr that I am seeing every Three months as I am on an Asprin trial-I am hoping it will be my original breast Consultant. Thank you xxxx
Hi there. I have been in the same situation as you are. My breast cancer has spread to my bones. However i am still working full time and do all the things i did before.(except running) i am on tamoxifen and denosumab , these drugs have very little side effects. Your oncologist will give you your results. I know its hard but try not to worry. Breast cancer in the bone can be contolled. Ive been stable for almost 2 years now. I hope ive been helpful. Take care. Xx
Hi Lily, very helpful-thank you and thanks for sharing how you are living with BC bone metastasis, sounds like you are doing really well and I really hope that contines for you. Where did the cancer spread specifically for you, how did they find it, it is localised or in many areas. I am also worried about having to have chemotherapy, how likely is that? Best wishes Amanda
I didn't have chemotherapy but everyone's treatment plan is different. It spread to my left illiac bone in my pelvis and also my sacrum, t2 vertebrae left shoulder, right femur and ribs. They discovered it when they were scanning my liver. My liver was clear. I had a bone biopsy which confirmed their suspicions. I tell myself every day, cancer doesn't have me I have it. Have you got anymore tests booked? Xx
Hi Lily, thats is quite a wide area. Glad your liver is clear. My bone scan is scheduled for tomorrow and so far, or until findings are actually reported/confirmed and them given to me then I will know whats next. I assume it will be a 2 week wait after the scan? I know they said my ribs are the concern but I had lower back ache for several months and today I am having hip pain, so I am expecting bad news. Did/do you havesee a bone Consultant at all xxx
No my oncologist deals with everything. Idont think its as long as two weeks for bone scan results a week to 10 days maybe. If you have a biopsy the results take longer as they have to dissolve the calcium and that can take two weeks. Good luck with the scan today. Xx
Thanks for the information Lily, appreciate it and your good wishes, Amanda xxx
4th December @ 4.30pm, received a call from oncolgy consultants secretary (not my Breast Surgeon Consultant) to inform me that they had received my bone scan results and great news, no sign of any spread... thinning bones due to age and degeneration. To say how relieved i am is an understatement- feel as if I have a second chance at life.... and I’m going to grasp it with both hands and legs and live it for as long as possible.
Oh, that's such great news Amanda865. I'm so pleased for you!
I know.... thank you latchbrook.... i was convinced, it had spread for a number of sensible reasons, including months of lower back pain xxxxx
I guess this was one of those times when you didn't mind being told it was because you were getting old Amanda865!
Excellent news!!!! So pleased for you. Go and celebrate. Xx
I should say latchbrook
Thanks Lily xxxx
Well the good feeling didn’t last long! Last Friday 7th Dec, I received a call from the Respiratory Consiltant U saw in A&E and whom had ordered the CT and Bone Scans. He wanted to see me in his clinic on Tuesday 11 Dec, I also found that a letter was on its way to me from the Vascular Team as I have an enlarged blood vessel next to my spleen and going to my kidneys. I
On Tuesday I went along to the appointment on my own, I thought it was just a follow up on my pleurasy And he wanted to sign me off from his care?
When I saw him, he asked about my understanding of my bone scan results and I told him that no cancer was detected, which he confirmed and showed me the radiologists report to confirm this, however he said whilst he is not a radiographer, he saw something on my CT scan which has raised concerns with him and he discussed this with his teams radiographer as well as with his team in their MDT who all agreed that there was a concern that needed further investigayion. He showed me the images of my ribs and highlighted lucients and variances. when I asked what he thought it was he said Myeloma (form of blood cancer), he said he would arrange an immediate blood test and take urine sample to check got this and irrespective if it comes back negative or positive he would also be arranging a full body MRI scan. He said he would be seeing me again a further two times before Christmas.
He also said that the vascular team have discussed my case and treatment plan for my enlarged blood vessel and that they planned on seeing me go discuss putting a stent in!
So I am now in limbo and back to square one... but now worried about a totally different type of cancer that I may have which is also untreatable but very curable!!!
Oh I'm so sorry to read this Amanda865. After your results 10 days ago telling you that the cancer hadn't spread to your bones to now be told that it may have spread elsewhere must be devastating. Then on top of this you have an enlarged blood vessel, it really doesn't seem fair.
Keep posting as I really think it helps to be able to talk to others in the same situation.
Sending you my best wishes
Thank you Latchbrook, it does help to talk on here. If it is myeloma it’s not curable but very treatable depending on the stage. Waiting is the hardest part as we all know. I have just boarded Cunard’s Queen Elizabeth today, so it will take my mind off it for a few days, and will be back the day before I go to find out my blood and ruins test results. This time I am taking my sister with me.
Oh a cruise on the Queen Elizabeth sounds fabulous Amanda865! Are you going somewhere exotic? We've never tried cruising although a lot of our friends do. My husband's not a very good sailor so he's worried about spending all that money and then being ill! However, he's seriously tempted by the thought of all that food
Hi Latchbrook, we have a two day stop in Bruges, the cruise is fantastic and very Christmassy. You and you’re husband would absolutely love it. I’m not a great traveller, I have been cruising g since 2003 and only one incident where I was seasick for 24hrs travelling through the bay of. Is at (it was a particularly bad crossing as even the crew were affected). Please ask him to try it, I promise it will be ok Xxx
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