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Willard68, I was just diagnosed in January 2018. I endured a 7 hour surgery that was suppose to remove 95% of the tumor. However, the tumor was also wrapped around my spinal cord as well as other vital tissues. I spent 6 weeks of intensive radiation that ended on May 4. I am terrified that they did not get it all and the side effects of the radiation are horrible. Please tell me about the treatment you had after diagnosis. I am also having pain in my sacrum and lower back and I am afraid there is a tumor there as well. Any advice you can offer would be appreciated.
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