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Bladder cancer

A place for people affected by bladder cancer to support one another, ask questions, and share their experiences.

after TURBT

Nanasue
Posted by

Hi all

I had my second TURBT to remove another cancer, after 2 and half years free however, that is not the problem, the first time I had no pain other than the usual discomfort on passing urine for a few days.  The op was on Monday 18th and the surgeon decided to use a catheter so I stayed overnight, during the time in hospital the pain was quite bad but I was given Ibuprofen and Paracetamol but when I came home and since the pain has been really quite severe.  Even 6 days on I am still taking the two medications combined three times a day.

I just wondered whether anyone else has had this happen.  The pains are very similar to, but more extreme than, period pains.

Thanks for any answers.

rily
Posted by

Hi Nanasue. Sorry to hear you are still in a lot of discomfort. It is recommended you contact your medical team or CNS if severe pain continues for more than 3/4 days and  if the pain is not subsiding. Always best to get these things checked out if you have any concerns. Difficult at the weekends I know. Best wishes.

Best wishes to All,   rily.  What is a Community Champion ?

Nanasue
Posted by

Hi Rily

Thanks I was going to but will have to wait until Tuesday so thought I would ask the Groups opinion.

Sue

Herothedog
Posted by

Hi Nanasue I have had pains very like period pains at various times after bc treatments. I always think it is muscle pain/spasm from soreness of tubes poking up the urethra, and I swallow painkillers till it goes. Catheters in particular are often the cause. I hate them. Nonetheless like Rily says definitely get medical opinion from the urology dept asap. So glad hospitals are back in operation again, hope you get it sorted. x

winkers60
Posted by

Hi Nanasue,I’m sorry to hear you are in a lot of pain.Don’t wait till Tuesday if the pain gets worse.Out of hours help is there if you need it.I used to find a hot water bottle was helpful for this type of pain.I hope you feel more comfortable soon.Take care,love Jane xxx

Nanasue
Posted by

Hello  Thanks for the reply, I had to go to a private hospital taken over by the NHS which was completely Covid free to have the op.  I will phone CNS on Tuesday as pains are rather persistent, never had them before.  But hay ho strange times.

Nanasue
Posted by

Hi Jane

Thanks for the reply, afraid I don't possess a hot water bottle, I think the last time I used one was when I lived at home with Mum and Dad some 50 odd years ago.  So I will keep taking the tablets until I can get medical advice.

Stay safe and healthy.

Sue

winkers60
Posted by

Hi Sue,That’s a shame as I’m sure it would help.I hope you can get some advice on Tuesday.Take care,Love Jane xxx

Herothedog
Posted by

I’ve still got the hot water bottles from my mum’s house, and she died nearly 40 years ago. These things don’t seem to wear out do they, although one which was actually made of rubber did perish eventually. Never use them normally but they are marvellous for pain relief. 

Teasswill
Posted by

Wheatbags are also good. Just heat them up in the microwave.

We used to have hot water bottles, but like you say, rubber ones & they perished. I expect newer ones are made of a different material.

BLANKET
Posted by

Hi nanasue,

How're you doing today?  You could always ring 111 if still in pain.  

H, as a child I used to love to sniff (sounds peculiar) inside the hot water bottle. Although I'd be too scared to use one these days in case it scalded my legs. 

T, I tried the wheatbags too, but found after a while they began to smell quite unpleasant.

What I use now is a gel bottle that you put in the microwave, but they can burst too if you keep them in too long.  Lidl have them in every so often, they cost about £3.99.  

Nanasue
Posted by

Hi Blanket

I am calling CNS tomorrow as pain is still there, however slightly better now I am mentally happier knowing others have suffered the same.

Thanks for caring.

Sue

winkers60
Posted by

Hi Sue,I hope you get on ok tomorrow.love Jane xx

Denby
Posted by

I have successfully improvised a hot-water bottle. Part fill a one litre/two-pint plastic milk bottle, squeeze slightly before screwing top on very tightly, the slight vacuum reduces leaks. Shake hard to check how watertight it is, they vary a lot. If Ok stretch a wellie-sock over it to avoid overheating yourself. 

Hope the need for it is reducing, but another lockdown fix for anyone who needs one, even if it's for gardener's backache! BTW lovely poppies Jane, a real cheer.

Denby