Bladder cancer

A place for people affected by bladder cancer to support one another, ask questions, and share their experiences.

help with some terms please

camelot
Posted by

Just needing a little help with some terms please on a letter my uncle has had. He is a couple hours drive from and his partner read the letter to me. She doesn't understand much of it and forgets what has been told as is elderly herself. We are trying to get to speak to his team directly once uncle has rung and given his permission.

he had a bladder resection in mid December and went for follow up a couple of weeks back. he still has a catheter as was retaining urine when did a trial without the catheter.

G3 PT1TCC

I'm guessing the G3 is the grade of the cancer and if in the layers of the bladder.

PT1 I am not sure of the P. T1 is depth into the bladder wall and I think this is not too bad being a 1.

TCC transitional cell carcinoma.

he also had bilateral adrenal adenomas which was discovered on CT. he now needs a CT with washout. I think they think this is going to be a bladder washout but from my understanding its a dye put into the bloodstream and then ct scan to see how quickly its removed from his system.

thank you in advanced for helping.

rily
Posted by

Hello and welcome to the group. Sorry to hear about your uncle, but be aware bladder cancer can be treated successfully. You've got it pretty much spot on with the terms.

T = tumour and is the staging (1-4) . 1 being early stage.

G = grade (1-3). this is the type of cell and how aggressive it is.

TCC = transitional cell carcinoma. The most common type of tumour.

P = pathology. This just means the biopsy was carried out in a lab.

Following his TURBT (transurethral resection of bladder tumour), he should have a follow up consultation to discuss treatments. In many cases, a follow up TURBT is done to mop up and verify the findings. I hope this helps. Please feel free to ask anything you like. Many of us have been there. Best wishes.

Best wishes to All,   rily.  What is a Community Champion ?

camelot
Posted by

Thank you! 
i just couldn't get the P.

he hasn't been offered anything else apart from this CT for the adrenal adenomas.

His partner thought at the last meeting they said the tumour had returned already but we’re really not sure she has heard correctly.

Hoping to find out more if we can speak to doctors direct. 

rily
Posted by

Hi . A CT scan with contrast dye is standard to check there is nothing else outside the bladder, although I don't know how the adenomas fit in. A chemo wash is different and part of treatment. It must be difficult for you not having the full picture. Most cancer patients are allocated a CNS (clinical/cancer nurse specialist) with a dedicated phone number. These are usually the best people to contact for information if your uncle has one. Saying that, they would be unable to give you any information without your uncle's permission. Best wishes.

Best wishes to All,   rily.  What is a Community Champion ?

Teasswill
Posted by

I would add that it's also quite likely they'll want to another 'TURBT' to confirm path report before advising on treatment options. Once they have the full picture there will be a Multi-Disciplinary Team (MDT) meeting of various specialists to advise on recommended treatment. More waiting, I'm afraid.

camelot
Posted by

Thank you.

there has already been a MDT meeting & i think this CT scan & washout has come from.

I’m guessing the G3 part means its an aggressive cancer and could easily return.

he’s not that well in the sense that he has diabetes & an airtic aneurysm was detected on his CT last year so he has appt for that too.

 

rily
Posted by

Hello again . Yes G3 is the faster growing type of cell, but is the most common. I am sure like most of us you have been on Google, but be aware there is a lot of out of date and misinformation out there. For detailed information, stick to recognised sites such as Macmillan info on bladder cancer , but there is always someone here to share personal experiences. Best wishes.

Best wishes to All,   rily.  What is a Community Champion ?