Bladder cancer

A place for people affected by bladder cancer to support one another, ask questions, and share their experiences.

Anyone had a reaction to the CT scan contrast dye?

foxbrush
Posted by

About 35 years or more ago I had a scan, (not CT in those days) and had the contrast dye. I broke out with huge swellings on my head and was told not to have  that dye again.\

I have not had the dye since but having another Scan on Sunday and surgeon would really like the dye, so not sure about that, will discuss it with the scan Docs.

Cant imagine its just me, ?? would be interested in others experience.

Ladymel
Posted by

Morning, yes I had a reaction to the dye although not as severe as you. Felt flu type symptoms and shaking for about four days after. I was told to tell them each time if I needed more scans as they could offer another type I believe. 

Hope all goes well x

Crustybladder
Posted by

My symptoms are milder than yours - acute nausea, vomiting sometimes, a burning sensation in my groin and visual aura similar to migraine without the headache. I'm pleased to report that since I've had my bladder out, the feeling that I'm peeing myself has stopped (if that can be regarded as a plus).

CB

What if the Hokey Cokey IS what it's all about?

rily
Posted by

I've had lots of scans over the past few years with no after effects at all. It might just be me, but I find the feeling quite pleasant in a strange sort of way. Best wishes.

Best wishes to All,   rily.  What is a Community Champion ?

winkers60
Posted by

Hi,Back in 1983 I had a bad allergic reaction to the contrast dye.After several hours I was finally allowed home.I remember getting onto a packed bus bright red and covered in enormous hives.People were staring and backing away.I was forced to announce to the whole bus that I was not contagious and it was just a bad reaction ! It took a couple of days for the itching to stop and the hives to go.Not an experience I ever want to go through again.I have never had a scan with contrast since but that might change.Jane XX

Ade123
Posted by

Definitely agree with you on that rily always kind of liked having scans, felt reassuring in that every thing was been checked  

foxbrush
Posted by

That sounds like my reaction Jane, I was told by the scan doc not to have another dye injection recently, as the second episode can be worse than the first.

John

Herothedog
Posted by

There must be an alternative for allergic folk I hope! Fingers crossed for you foxbrush let us know how you get on? x

Inanna
Posted by

I can relate to what you say about the pleasant feeling Rily

Love Inanna

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foxbrush
Posted by

I do wonder how essential the dye is, in our case I know its easier to see a tumour but is it that much easier eg can it still be seen.?

Wilbert
Posted by

Mr W had a ct scan with contrast ie dye yesterday and apart from feeling slightly  flushed he had no other reaction 

Person doing scan did ask him.several times to confirm he was not allergic to iodine 

best wishes 

Wilbert 

Wilbert
Posted by

A lady ahead of Mr W yesterday told her daughter it was rather nice a lovely warm feeling right down to the tips of her toes 

So there you go

Wilbert

nickfreckle
Posted by

Rily, funny you should say what you did, because when I had mine Monday and the feeling kicked in when I had the contrast, I actually thought "Actually, this feels quite nice!" 

I suppose after you've had it a few times that the weirdness of it all wears off. Or it's now me that's become weird and not the sensation...

sueCC
Posted by

Good luck Wilbert for Mr W results. The only thing I can add to CT scans with contrast is to drink water before and after to flush it out x

Sue Xx
winkers60
Posted by

Hi John,Are you allergic to iodine ? I face the same problem as the hospital rang this morning and I'm booked in for a scan next week.I mentioned I was allergic to Iodine but am still unsure whether I can get away with not having the contrast.I managed to last time as the radiographer was on her own and it turned out that 3 out of the 4 patients she had seen had a contrast allergy.She was not going to put us all through the dye knowing that she would have no back up if something went horribly wrong.Strangely if I eat dates the same type of reaction happens with the addition of severe nausea.Good luck with your scan.Love Jane XX