Bladder cancer

A place for people affected by bladder cancer to support one another, ask questions, and share their experiences.

Cystoscopy

foxbrush
Posted by

just started on this road and waiting for my scan and turbt.

 My cystoscopy was painful when reaching around the prostate area, just lubrication and no anaesthetic. As I’m on the 3 month checks now, nurse said I would have to get used to, bless her.. Any tips to help, eg taking painkillers just before  or do I have to man up

rily
Posted by

Hi . Sorry to hear your flexi scope was a bit painful. Probably because your tumour has not been removed yet and this would cause extra discomfort. I have had about 20 of these flexis over the years and generally have never had any pain or discomfort. Occasionally you get a doctor or nurse who can be a bit clumsy. The gel itself is supposed to be an anaesthetic. Some people prefer to take a painkiller before going in for these, but as I say, I have never needed any. We do get used to them. Best wishes.

Best wishes to All,   rily.  What is a Community Champion ?

foxbrush
Posted by

Thanks  rily, I had one about 30 years ago and was in agony. Had a phobia ever since. Surgeon did say they prefer the lubricant so looks as though I have to just get on with it. Should cure the phobia  

Crustybladder
Posted by

Hi foxbrush

The one bit of advice I was given was to open my mouth when the doc pushes the cystoscope in your urethra. This is meant to stop you tensing up and closing the bladder sphincter muscle.

So I did that and it still made my eyes water.

CB

What if the Hokey Cokey IS what it's all about?

foxbrush
Posted by

Lol, glad it’s not just me then.

Denby
Posted by

Sounds like my husband having 'strictures' ie places where the urethra is narrowed so they have to use some force, maybe has a silver lining as they have always booked him for a daycase general anaesthetic so far....As a lady that's never had to be catheterised I can only wince empathetically for you all, which I do.

Denby

Lugsy
Posted by

Hi Foxbrush,  I can understand what you mean and it's just the thought of it that makes me tense up. Relax , they say, I never do . It does get easier over time as you and your body get used to the procedure. 

Good luck going forward.

nickfreckle
Posted by

I think I'm the luckiest man alive - because random fact, is I've never had a flexi!

My Ultrasound showed up the tumours so they said no point going in, and I went straight to TURBT - then post treatment, I had 2 x CT scans. My Urologist thinks CT scans are so good nowadays, there's no point sticking anything down there that's not really needed. 

Even now, my old chap is breathing a sigh of relief...

foxbrush
Posted by

Thanks, I can live in hope then LOL

Crustybladder
Posted by

I failed to mention that as the scope went up my pipe I said something like 'Four foot snake!'

Don't forget to drink plenty of water afterwards. Most of us felt like we were peeing razor blades for a few days and I wouldn't want you to miss out on the full experience.

CB

What if the Hokey Cokey IS what it's all about?