Bladder cancer

A place for people affected by bladder cancer to support one another, ask questions, and share their experiences.

Bladder Cancer

Diamondace
Posted by

Hi

I'm at a loss and totally naive. My mother has been told she has bladder cancer. I have spent the last year backwards and forwards to doctors saying something is wrong and only a month ago did they start referring her and doing tests. Our heads are all over the place and I've been told she has in excess of 3cm tumour, needs it removed and will be catheterised. All of a sudden after not being able to get doctors appointments for 3 weeks, we can now get one within 20 minutes of making a call. That in itself is worrying. Mums operation is booked for 15th july but that is all we know at the moment. What should we expect next? 

Mo600
Posted by

Hi

You have found the right place to help you with your worries. This site has been brilliant for info and reassurance since my husband was diagnosed last year. Others will be along to give good advice. There are lots of treatments and things will become clearer once the tumour has been removed and analysed. My husband stayed in for a few days after the operation until the urine was clear.Others seem to have been discharged more quickly.  I learnt a lot from this site, my husband didn't want to know details but I felt more empowered by knowing what questions to ask and what might happen next. 

Take care, Mo

rily
Posted by

Hi and another welcome to the group. As Mo600 says, this is a good place for support. Your mother's story is not uncommon in being late with a referral. There are awareness groups trying to highlight this. Your mum's operation is called a TURBT (trans urethral resection of bladder tumour). A standard and usually routine procedure. It can be done in day surgery or an overnight stay. Time in hospital depends on how much they have to trim away. Mum will wake up with a catheter in and this stays in until the wound starts to heal and she can wee on her own. Usually taken out before leaving hospital, but some people need to keep it in longer. Once it is removed, your mum will have some slight discomfort for a few days when she has a wee. Generally just a sting feeling, but it passes. During the op, they will take biopsies for analysis. It will take a couple of weeks for the results, and these results determine what further action is necessary. Try not to Google as there is a lot of out of date and misinformation out there. I hope I have not overloaded you with too much information. Many of us have been there and have come through ok. Best wishes.

Best wishes to All,   rily.  What is a Community Champion ?

Herothedog
Posted by

Hi Diamondace, welcome to this fantastic group. Hopefully my story will be a cheer up for you, I am a 72 year old woman and saw my GP 3 times over 3 years before getting the cystoscopy which highlighted a large tumour. Mine was definitely in excess of 3cm. That was in October 2017, and here I am 19 months later fit and well and enjoying my life. Great to hear your urology team is getting your mum in quick, I'm sure you will have a far better response from now on. Once the tumour is removed it will go for biopsy and they will tell you the stage and grade, and describe the treatment options. It can take about 4 weeks between removal and results appointment. Sending your you and mum lots of support. x