Bladder cancer

A place for people affected by bladder cancer to support one another, ask questions, and share their experiences.

Return of tumours in bladder

Roxy204
Posted by

Hi!  I find myself on here again looking for your advice.   My husband went for his fourth year cystoscopy yesterday and we were told there and then that he had two tumours in his bladder. Four years since he had his first bladder tumour and chemotherapy straight into the bladder we thought we had seen the back of cancer but then hey back with the biggest shock yesterday.  The nurse explained that she would refer us urgently as they can’t tell what stage it’s at until they operate again. Can anyone tell me roughly the timescale we r looking at for removal.  How urgent is an urgent referral ?  Thankfully we hadn’t booked our holiday this summer as she said we would need to cancel it if going abroad. Any advice on bladder cancer return would be great as we are both shell shocked. This Group was a Godsend to us last time. Thank you. 

lucy-l
Posted by

Hi Roxy24,

Sorry to hear the news about your husband.

I was diagnosed 2 years ago and have had 3 reoccurrences since then. The timescale for the tumour removal, certainly in my hospital is 24 days( not sure this is the National guidelines or not) and my procedures have always fell into this timescale.

Unfortunately bladder cancer does have a high recurrence rate but is very successfully treated. It sounds as if your husband’s initial tumour was low grade if he only had the chemo wash after his TURBT which mine was.

Depending on the size of the tumours I have just had them removed, not always with a chemo wash afterwards, and have been on 3 monthly checks after that. After my most recent reoccurrence I was started on a 6 weekly course of mitomycin ( chemotherapy washes), two weeks left to go!

Hope this helps, all the best to you both.x

rily
Posted by

Hi . Just to echo what Lucy says. We know bc is known for recurrences, but it still must have come as a shock after such a long time. The fortunate thing is, because of this we are monitored regularly, anything new can be identified at an early stage. We often hear the word "urgent" but this generally means as soon as possible, and weeks rather than days. If you have not heard anything within 2 weeks, I would ring the urology waiting list office to check if they have a date. I hope all goes well. Best wishes. 

Best wishes to All,   rily.  What is a Community Champion ?

Roxy204
Posted by

Thank you so much for your advice. We are just in shock just now. It has hit my husband harder than it did the first time but he is glad to know that it is not uncommon. I hope you keep well x

Roxy204
Posted by

Thank you for your advice. I remember your help the first time Riley when we were so nieve. The last time even our dog got cancer at the same time!  I will certainly get in touch if we don’t get an appointment in two weeks. I will keep in touch x