Bladder cancer

A place for people affected by bladder cancer to support one another, ask questions, and share their experiences.

Question & people to talk to x

Louloubell
Posted by

My dad, who's 89 has invasive bladder cancer, turbt removed small tumours but left a decent sized tumour that they've said isn't removable so he's being given one radiotherapy session to help with bladder fullness (needing to go alot) and bleeding. They've said theres no sign of it having spread anywhere else but no further treatment. I guess I'm trying to find out if its normal not to try and treat it further, feels like because of his age/cost they're not going to try? Hes incredibly fit and active for his age, survived serious pneumonia episode a few years ago, still drives, still does so much... does anyone have any advice, thoughts? I dont know whether to suggest he seeks a private opinion in case the NHS just dont believe hes worth the money... anyway thank you so much in advance, feel so alone x

rily
Posted by

Hello and welcome to the community. Sorry to hear about your dad. This must be a difficult time for you and your family. In general, the age of a person does not really matter. It is the fitness and ability to cope with treatment  that is taken in to account. We have had members here in their 80s who have undergone treatment. We don't know why they can't remove the tumour so that may have something to do with it. It may be worth while getting a second opinion or asking why he can't have any further treatment. Best wishes.

Best wishes to All,   rily.  What is a Community Champion ?

Louloubell
Posted by

Thank you for your reply drily x The report to his GP says the tumour is growing through the wall of the bladder and as such cannot be fully resected... I dont know maybe it's just not possible to remove without taking out the whole bladder which I guess might be too much for his age, anyway I'll ask again when we see the consultant I guess. I do have the nurse specialist number, maybe I could ask her. Anyway thanks again x

sueCC
Posted by

Hi Louloubell, I think I agree with Rily about getting a second opinion, it could put his treatment back a bit but as he’s not getting any I can’t see the harm. Definitely ask the CNS why he can’t have treatment. Wishing your dad all the best X

Sue Xx
Louloubell
Posted by

Thank you for your reply rily x The report to his GP says the tumour is growing through the wall of the bladder and as such cannot be fully resected and that there is no curative treatment. The consultant said to remove the bladder would go along with chemo and radiotherapy over weeks and that would be too much for someone his age but why not a partial removal of the bladder without chemo and radiotherapy, surely that would be better than leaving it? Anyway thank you again for the reply, it means alot x

Crustybladder
Posted by

Hi Louloubell

As others have said, age is no barrier to treatment, it's about fitness. I'm not aware of any partial bladder removal procedure, it's all out or radiotherapy, chemotherapy or immunotherapy, or nothing.

Bladder removal surgery is a big op and can take up to a year to recover from. However, some patients will undergo any treatment to improve survival prospects. I agree that you should seek a second opinion: have his GP refer him to another hospital.

Let us know how you get on.

CB

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