Bladder cancer

A place for people affected by bladder cancer to support one another, ask questions, and share their experiences.

Bladder cancer options running out

Boxmaker
Posted by

Hello everyone

My wife has been having chemo since February and her last session is on 5th June.we have been told the the chemo hasn't work as well as they wanted basically it hasn't shrunk. It has also spread to 4 lynth nodes and cervix and maybe the womb. They are saying that surgery isn't a option because it's too much to remove so for now they are going to do a bladder diversion to help with the continued water infection my wife as.also they have recommended we go on a trial drug called alantis which is a blind trial first before radiotherapy. 

Is there anybody else in a similar situation we just need to talk to someone x

rily
Posted by

Hello and welcome to the community, although sorry to hear you wife's chemo has not been as good as expected. The Atlantis trial is fairly new and we have not heard too much about it, although we do have members here who have been on it and may be able to help. I had radiotherapy, so may be able to answer any questions you have on that. Best wishes.

Best wishes to All,   rily.  What is a Community Champion ?

Boxmaker
Posted by

Thank you for the warm welcome 

I expect I will have some questions later we are still trying to understand everything 

Richard 1944
Posted by

Atlantis is the name of the trial not a drug. They send off a sample from tissue taken by the surgeon. Then identify particular biomarkers for your type of cancer. You then take a course of tablets from one of three cancer drugs. The aim is to try and prevent tumours from reoccurring. You will need a CT scan before treatment and regular monitoring. I see the oncologist 13 June to ascertain if the trial is suitable for me. My type of blood thinner needs to be assessed. On this because of two strokes several years ago. Hope all goes well for you. Keep us posted.