Bladder cancer

A place for people affected by bladder cancer to support one another, ask questions, and share their experiences.

Recovery from radical cystoprostatectomy

Ludwig
Posted by

It has been a while since I engaged with this site. This is because there was little to report beyond my previous postings. I will update and hope this will be of some benefit to anyone facing the prospect of bladder removal surgery particularly.

The operation was carried out robotically on 21 February, 2019, about 13 weeks ago. I left hospital on day 5 and have recovered well generally apart from minor problems with a superficial wound infection. I have a urostomy bag which has been very easily adapted to and is manageable. The surgery was successful in clearing the cancer 'to the margins', to use the phrase. The pathology confirmed that I had carcinoma in situ within the bladder (G3pT1) and a tumour in the prostatic urethra (G3pT2) constituting locally advanced spread. There was an incidental finding of low-grade prostate cancer (Gleeson 6). It seems that all has been cleared. The surgeon assured me that the option to have this form of treatment in my case was the more effective one given BCG immunotherapy as the alternative. Research suggests that this kind of surgery may be deemed to be over-treatment in some cases. 

I have returned to swimming three times/week, walking for 45 mins/day and am intending to resume martial arts (Taekwondo). I live in hope that the disease is gone in its entirety. My outlook in life has shifted. To use a term borrowed in part from the mindfulness literature I endeavour to 'claim my experience' rather than let it claim me. I have just read Michael Singer's "The Untethered Soul, the journey beyond yourself" which I realise might not be a book for everyone. 

I hope that this is of some use to someone out there. I am really happy to answer any questions I can about the experience.

Best wishes 

Ludwig

I. B. Stressed.
rily
Posted by

Hello . Really nice to hear from you again. Good to know you are doing well. Your information will be of great help to others who have choices to make. Wishing you well with your ongoing recovery. 

Best wishes to All,   rily.  What is a Community Champion ?

Ludwig
Posted by

Thank you Riley.

I. B. Stressed.
Ludwig
Posted by

Sorry - I meant to ask how you are. Hope all goes well. 

I. B. Stressed.
Crustybladder
Posted by

Hi Ludwig

Your comments serve to confirm that there is a life to be had, albeit modified, after treatment for bladder cancer.

Go live it to the full, I am!

CB

What if the Hokey Cokey IS what it's all about?

rily
Posted by

Hi Ludwig. Thanks for asking. I am doing ok. Just passed the 5 year clear mark.

CB. Hope you had a good time in Rome. 

Best wishes to All,   rily.  What is a Community Champion ?

Lugsy
Posted by

Great to hear you are doing well and again taking it all in your stride. Good luck going forward, always great to hear positive outcomes.

Ludwig
Posted by

How are you getting on Lugsy. I hope you are recovering well.

I. B. Stressed.
Lugsy
Posted by

Hi Ludwig, thanks for asking . I am doing ok ,  unfortunately my recovery has been hampered by infections and more time in hospital. The last 3 weeks have been the best since February , back on my bike, back to my IT job and then back to my physical job tomorrow. Not looking forward to that one as still very tired and leaking when doing physical activities but it's going to be a phased return, so that will help . 

My aim is to start swimming like yourself that will be a big help I feel. Onwards and upwards is the way as you have indeed shown.