Bladder cancer

A place for people affected by bladder cancer to support one another, ask questions, and share their experiences.

Incontinence

Lousar
Posted by

My husband is currently on 3 month appointments with oncology. His tumour neither shrank nor grew following chemotherapy and radiotherapy.  He was due to have a rigid cystoscopy last month but didn't feel well enough so it has been postponed for now. Over the last few weeks he has been struggling to make it to the toilet to wee.  At night especially he has become quite incontinent and has started wearing tena pants through the night and if he goes out. He's age 52. . I was just wondering if anyone else has or does suffer like this  it has only started recently. He is due to have an ultrasound next week but always find that other people's experiences and advice on the forum are a great help 

rily
Posted by

Hi Lousar. Sorry your husband is having problems with leakages. We know this can be one of the side effects of radiotherapy. Although I suffered with frequent urination, I didn't really have any incontinence. I believe his GP may be able to offer some medication to help with this. I hope all goes well with the ultrasound next week. Best wishes.

Best wishes to All,   rily.  What is a Community Champion ?

Joe Soap
Posted by

I had prostate cancer which started about 11 years ago,, which was treated with radio and hormone therapy. This caused incontinence which has got worse over time, and the Kegel exercises do not do much good. I'm alright at night, but if I take any exercise, I leak profusely. This also happens when I kiss my wife! 

I was reluctant to see my GP about this, as it is nothing compared to a real illness, but it is horrible to have to go around with a soggy groin. I have now started gardening wearing  a utility kilt, which is a great improvement. I have also begun to see my GP who has given me some pills which may do some good.

Another nonsense I have is repeated urinary tract infections, which have held up my current treatment for bladder cancer..These minor side effects are a nuisance..

.

Joe Soap
Teasswill
Posted by

Sorry, I'm female but do have experience of incontinence issues post RC & neobladder. I have a few suggestions. I'm aware that some men use a condom catheter for night incontinence - could be used daytime as well I expect. District nurse may be able to help with getting incontinence pads via NHS, or you can buy online from various sites (I use AgeUk  incontinence shop). If not VAT free you can claim exemption & you can get much more variety, cheaper than on the High Street.

Joe Soap
Posted by

Thank you for your help. I have been buying incontinence pads, but they are most unpleasant., because it is them that give me a soggy groin all day long. I do not have night incontinence at all. 

Now I am due to see a specialist incontinence nurse, whom I have seen before. She sorted me out for a year or so,  but things have got much worse since. Kegels no longer work, and I suspect recurrent UTIs don't help on top of bladder cancer treatment.

As for the recurrent UTI, my GP will not treat it as he says it is part of normal gut flora, but the specialist nurse says that if I present myself with a UTI next Friday for a BCG infusion, the whole thing will have to be cancelled. A Macmillan nurse told me  that GPs are programmed nowadays to refrain from prescribing antibiotics. I have a retired urology professor in the family so I begged him to unravel my problem. He was a professor in a continental university hospital, and he advised me not to bother with tests, but just get treated! Of course UK hospitals will not accept this, so I more muddled than ever.

Joe Soap
Denby
Posted by

Hi Joe, I don't know much about the after effects of prostate preatments, radiotherapy etc. But I just wanted to send sympathy and fellow feeling as my husband though much older than you is likewise pretty fed up with having to take precautions against 'not making it' day and night after each chemo, especially if the nurse is rough like this week. Night by and large is easier as he can sleep naked [fortunately we can afford to have the house warm enough] with a bottle right by the bed.He has had to live in track bottoms daytime as jeans are too slow to deal with.

The only thing I can think is, if the BCG nurse does diagnose a UTI, can they either give you correct antibiotics from the hospital or at least write a note for the GP, as long as you could get that back to them before they and your pharmacy shut for the weekend? At least that would be settling the issue from 'higher authority'. Meantime I suppose it's just the gallons of lemon barley, I find it quite pleasant drunk warm on a cold day, [but make it a bit less strong as the heat makes it taste more acidic], and cranberry tablets as long as approved by your Dr or pharmacist.

Long ago my husband's doctor neighbour advised him against coffee when he had recurrent UTIs, as coffee can irritate the bladder, but I expect you know that.

Hope you have a more  restful Sunday,

Denby

Joe Soap
Posted by

If your husband is much older than me, he must be pretty ancient. I'm 88.

Joe Soap
Denby
Posted by

Oops sorry got mixed up with husband of first poster in the thread. Brain effects of interrupted sleep....!

Denby

Joe Soap
Posted by

Re-reading your comments on your husband's problems, I am still more concerned by incontinence than by the cancer, which is stupid. Mine is not urge incontinence, but stress which means that if I take any exercise, I leak copiously even after emptying my bladder. (I also leak copiously when I kiss my wife!)

I enjoy gardening, and this brings on excessive leaking. Those pads only leave me with a very soggy groin. My solution has been to invest in a utility kilt, without any underwear in proper Highland style.

I just cannot make out what is going on.

Joe Soap
Teasswill
Posted by

That sounds more like a muscle weakness - do you do any pelvic floor exercises?

Joe Soap
Posted by

I do.They used to work quite a bit, but no longer.. I have  stress incontinence, which means that if I get energetic, my bladder leaks a lot. It gets particularly bad in the evenings, although sleeping is no problem. One wheeze I have discovered is to wear a utility kilt when gardening, without underwear.. At least that way, I don't go around with a soggy groin, which is what those Tena pads give you. And the garden gets a dose of nitrogen. 

Not a pleasant subject.

Joe Soap