Three weeks ago I went to my GP because I had visible Red Blood Cells > 100 in my urine (bright reddish brown in colour). Had urine testing and there was no infection; and I am having no other symptoms apart from a bit of a slow stream and not completely voiding each time I pass water . Exactly the same thing happened again a week later re; the blood in urine.
GP referred me for an Ultrasound, then I had a cystoscopy where consultant said I had an abnormal area and have to have a CT scan this Friday, followed afterwards by a pre-op and then TURBT.
That was the only information I was given by the consultant, who told me to report to the nurse for details of the CT scan & TURBT etc.
The nurse just gave me an information document about TURBT; that said about bladder tumours and cancer.
Does this mean I have cancer; or that they suspect cancer, or something else? Nothing was explained to me and I would rather know if it is suspected, or if they know it is; and perhaps didn't tell me because I was on my own for the cystoscopy?
It's all terribly up in the air at the moment. Any comment would be welcome.
Hello Esme, and welcome to the group. It is obviously a worrying time for you. The uncertainty and not knowing can be very stressful. If something abnormal has bee identified at the cystoscopy, then they will "suspect " cancer, and so further investigation is standard. The CT scan is normal in these cases, to check there is noting else to worry about, and more to rule things than anything else. They are unable to tell by the visual inspection, and so during the TURBT, the bad cells will be shaved away and sent to the path lab for testing. It is then another anxious couple of weeks to get the results. The op itself is again standard and if only abnormal areas are identified, you may be in and out in a day, or a possible overnight stay. Be aware that if it does turn out to be bladder cancer, then it can be treated successfully. Please feel free to ask any question, many of have been there. Best wishes.
Thank you Rily for replying so promptly; its much appreciated.
As you say, its a waiting game; and what will be, will be.
Thank you for your kind words.
Rily has,as always, given an excellent and, from my experience, accurate description of this ‘condition’. At my (as a female) initial outpatient cystoscopy, at first the surgeon mentioned the word “tumour” and then said “cancer”. My understanding is that bladder tumours can be benign but even if it is “cancer”, like mine, it all seems easily treatable so far. By easy I mean manageable...the transurethral resection is uncomfortable but I wouldn’t call it painful (more soreness) and I was home next day.
They probably won’t be able to give you a definitive answer re cancer or not until the histology report from the resected material gets back (in my case my appointment with the surgeon to discuss this came 3 weeks post-op).
Do ask your medical team all the questions you have and this site has lots of people’s experiences which I hope helps. You can ask all here too. Wishing you well.
Thank you for your replay Rosie.
Had my CT scan today with some dye injected into my bladder; won't get any results from that yet of course. I also got my date for my pre-op; it's in a week and a half .
I have been doing some reading and it seems to be that certain blood work results can sometimes indicate possible malignancies? Especially things like haemoglobin, serum creatinine, serum alkaline phosphatase and serum C reactive Protein level. All mine are either higher than, borderline, or lower than the norm. Did anyone else notice these things with their bloodwork during investigation?
The problem seems to me to be, not getting the knowledge but how to interpret it! Others on this site or the specialists in the Macmillan team might be able to answer your questions in this case. My experience is that this stage of investigation is the most anxiety filled and, therefore, can result in ‘worse case scenario” imaginings about outcomes......of course. I do always advise asking the members of your care team (I’m a retired nurse!) any and all the questions that are causing anxiety. I do !!
Wishing you well
Blood tests are done prior to a CT scan primarily to check the kidney function, to make sure they can deal with the contrast dye. Bloods can show cancer markers, but can often give false positives and so not reliable. The old adage of one step at a time is appropriate in these cases, although it is hard not to look ahead. Best wishes.
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