I’m new - just had my investigation appointment

Hello Kitty bones

Welcome to our group. ️  Now that you are in the NHS system you will probably find that appointments and information come at you thick and fast. I know it's a lot to take in but stay in touch on the forum and I'm sure everyone will help with advice and support.

Love Ade xx

Hi Ade. Thanks for your comment. I’ve just had a call to say my pre-op is on 20th June and my Op is on 27th June. 

Today I’m feeling very anxious. 

Hi Kittybones

We all fully appreciate how anxious you are. I hadn't had any surgery before my TURBT (I'm 57) and had only been in hospital to have my babies. I found that the staff were all amazing and really tried to put me at ease. The surgery/process was very straightforward. I had to have a further TURBT 4 weeks after the first just to confirm the Histology results and I was not worried at all when I went in for the second time. Keep breathing and chatting on the forum. We are all here for you ️ 

Love Ade xx

Hi Kittybones,Sending you a virtual hug.Is there anything we can help with to calm your anxiety ? The pre op doesn’t usually take long.Have you had one before ? It’s best to take things one step at a time so you don’t feel too overwhelmed.Jane x

Hi. Yes, I’ve had a pre-op so I’m not so worried. It’s the fear of the unknown. I desperately want to know what’s going on inside. My brain is extreme. It starts with the worst possible outcome and then I have to rationalise each thought but I end up just as anxious as I was with the worst thought possible. I can’t stop thinking about what it looked like, was that a good sign or is it bad. Am I going to die, how will my family cope? How will I get through this etc etc. My health anxiety is extreme. I feel like I’m in a box and can’t get out. 

So many things are going on at once. I lost my job so I’m having to desperately find a new one but my head can’t manage all the calls and forms. I also can’t tell a new prospective employer that I might need time off for appointments without it looking negative. My pets have been unwell and so I have to watch them all the time. One isn’t supposed to jump so I’m constantly picking her up and putting her down etc. I feel like I do have people around me to help and support but it just adds more worry and stress…and guilt! 

This is me, one day after my assessment. It’s so hard. :( 

Hi Kittybones, it is good that things are moving quickly. I was wondering is there anything that you do normally that helps with the anxiety ? Are you able to go out and do things to distract yourself ? I know in the past if i have had anxiety I have felt so overwhelmed that i would just sit trapped with my thoughts . Its a horrible feeling. I hope you find the forum helpful and supportive. 

Hi Angela. That’s how I feel right now but I feel like I’ve got so much to do, I don’t have time to organise my brain which isn’t helping.

I have found that making a list and writing it on paper helps me. It unscrambles my brain. Its odd , but for me typing a list doesn't have the same effect, I have to write it down. 
One thing at a time and small steps . Take care of yourself

I find list writing helpful too.

Welcome Kittybones. Love Lynn x