So it's been decided that u need to have my bladder removed & this surgery us to take place very soon. For anyone else that has had this surgery, can you give me any advise as to what this surgery is like in terms of pain etc.... I'm a little bit apprehensive about it, I know I need it & definitely will have it done as its my best chance of survival, but that don't stop me from being scared x
I had my bladder removed in 2016 and have lived with a stoma and bag ever since. It’s normal to be scared, I was terrified and thought my life was over. How wrong was I. I had robotic surgery and the pain was manageable. My advise is to take all the pain relief on offer . You will feel weak and exhausted and I felt very tearful and wondered how I would manage life with a bag but my stoma nurse was brilliant.the first 6 weeks were the worst as your stoma will change shape but once it settled I have had no major issues. A couple of leaks but both my own fault. I was back at work within 3 months. The thought of this is much worse than the reality
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