Feedback meeting

  • 17 replies
  • 81 subscribers
  • 626 views

hi everyone. So the feedback meeting was today. The doctor confirmed it is grade 3 bladder cancer. I have to have another TURBT in January to see if it’s in the muscle wall. CT scans so far are fineHeart Doctor was really lovely. If it’s in the muscle wall then it will be bladder removal. Doctor seemed pleased that I have no symptoms currently. I really amnt sure what I feel. But what I am sure aboHeartt is the lovely messages from people on this forum made me feel I had an army behind me. So thank you Heart

  • Hi Joyce, I know its not what you wanted to hear today , the 2nd turbt ( which is normal practice to have the 2nd one) will give you more certainty of a plan. The important thing now is to fully recover from the 1st one, get lots of rest . Try to enjoy your Christmas , take one day at a time . you are right that tomorrow can take care of itself, worry cures nothing i was once told. stay with the group for when you have the ‘what if ‘days and you have more questions than answers. we will still be here to steady you . sending you a hug, hope you get a good nights sleep x

    Much love Angela x

  • Hi Joyce,Sometimes it depends on what type of bladder cancer you have.I had Squamous cell which doesn’t really respond well to radiotherapy or chemo.I had to have bladder removal.Love Jane x

  • Hi JoyceF, it is such a shock to be told that you have a Grade 3 cancer but there is light at the of the tunnel. Take your time and recover from the TURBT and enjoy Christmas with your family and baby Grandaughter and let the rest fall into place in the new year.

    Sending hugs and positivity to you and your family

    Love Ade xx HeartSparkles️ 

  • Hello Joyce, well now you know what the future may hold. However, once you have your second TURBT choices will become available. You should be given an opportunity to see an Oncologist to determine if chemotherapy/ radiotherapy treatment is an option. Whatever the outcome I wish you well. Garviv

    Garviv

  • Thank you for you your  good wishes. X

  • This BC business often seems to be one step forward, one back. One set of results but then different decisions to make. I recall feeling sick when I was told same news, but in the end actually chose surgery rather than have BCG. Once you have had the second TURBT results, you will know what options you have. Best wishes.

  • Thanks. Trying hard to stay calm. I think I was relieved that the scans were clear.  Have a chest scan next week. And then the wait till January.   Was the surgery bearable? The doctor made it sound a very big operation and recovery. Heart️‍