PET CT scan report confirms earlier CT scan findings - Disease has now spread to my lymphatic system and has shown up in several lymph nodes mainly in the abdomen, close to the original sources - the right kidney and bladder. So yet more treatment required to continue the nightmare of the last 2 years.
Surgery is not an option so its to be some form of chemotherapy. There is a trial of a new drug combination that I may be eligible for - Enfortumab Vedotin given with an existing cancer drug Pembrolizumab. This sounds promising, otherwise it would probably be more of the Gemcitabine and Carboplatin, that I had previously.
The latter made me progressively unwell, and had to be stopped after 3 of the 4 cycles, as I had to be hospitalised fro 2 weeks with sepsis, as the toxicity attacked my bone marrow. So I can't say I fancy riding that bike again. But apparently they may be able to give some other medication to mitigate the serous side effect.
Can't say I'm feeling very optimistic about the likely outcome, it just seems that the bl**dy thing is going to get me, it's just a question of when, and how much more I have to suffer before I reach what seems the inevitable end.
Hi
Glad your feeling better and being positive. I share your impatience when it comes to treatment. I wanted to get started asap, but unfortunately everything had to be done by stages, so I had a chance to recover. Keep positive.
