S4 Bile duct/liver cancer-bone mets (lower back/pelvis)

  1. ... in the eye of a storm... a ruddy great double-whammy cancer storm! 

    wish I could introduce myself in a more measured & coherent way, but I’ve re-written my intro to the forum over & over again, with too much, too little, too convoluted, too chaotic/random a set of statements... so, in a nutshell... there it is... & here I am among so many... 

    ... in the eye of the cancer storm... 

    here to learn & help & share

  • Hi  and welcome to the online community

    I'm very sorry to see in your profile that your sister has bile cancer which has spread to other parts of her body. It must be a very difficult time for the whole family.

    It's perfectly normal when diagnosed with cancer to be angry and confused and lots of people do not want to know their prognosis. It sounds like you're trying hard to support her and you might find this information helpful.

    You might also like to join the family and friends group which is a safe and supportive place to share your worries and get support from others who have members of their family dealing with cancer.

    To join just click on the link I've created and then choose 'join this group' on the page that opens. You can then introduce yourself and post questions after selecting 'start a discussion' and join in with existing conversations by clicking on 'reply'.

    You could also have a chat to one of Macmillan's nurses on the Support Line as it's available for families as well as patients. The number to call is 0808 808 0000 and it's available every day from 8am to 8pm.

    Sending a virtual ((hug))

  • Thanks so much for your response & for practical, helpful contacts. I’m following some up as I speak... Fingers crossed tone2

  • Hello, this is avile disease it doesn't care who you are, rich or poor, any other problems you may have it is just a vile disease. My hub 61 was diagnosed in Feb, given 6 months to live without chemo maybe a year with chemo. He is having chemo and he is a fighter. If it was me I wouldn't have chemo and would just ask to be kept out of pain. 

    But we are all different aren't we and I really belive in an individual's right to choose. You have my empathy because you are caught in the crossfire of a storm. 

    I am quite lucky that Kev accepted his alien as we call it and has gone to war with it. He is a gentle man, but today when he gas hid his chemo and then gets a high dose of steroids, he will get agitated and irritable and be like someone I don't know. He can't help it.

    Your sister has been given the news everyone dreads and hopefully she will come to terms with it. Try to keep yourself well and fed, because often us carers end up being sick because we forget about ourselves when loved ones are sick. Wishing for you that things gey a little easier for you to deal with and accept any help offered.

    Bug hugs Christine xxx 

  • Thanks so much Christine.
    Seems odd to feel reassured by others in similar situations, but acknowledgement of the difficulties we all face does seem to help.

    My partner was also diagnosed with  C 4yrs ago (S4 Ovarian) & it’s felt so much less ‘combative’ supporting her than it has my poor sis. But as you say, each one of us is different & as carers of partners &/or sisters, we have to look to the person living with C as our guide... & find support from lovely people like you & Maggie’s centres to enable us to adapt our caring to meet their individual needs.

    No one ever said life was easy did they?   

    Anyway, best wishes & all the positivity in the world to you & your ‘hub’.
    SistaFlo2 Two hearts