Ask Caroline, a Macmillan Nurse working with people who have Leukaemia, Myelodysplasia...
A support group for anyone affected by leukaemia to come together, share experiences...
Hi, I’m new to the page so sorry if this doesn’t make sense. I was diagnosed with ALL when I was 4 years old and very fortunately given the all clear when I was 8. As I was a child it all felt very normal for me and I was unaware of the severity of my illness and I suppressed any emotion related to those 4 years until the age of 21. I’m now 23 and am really struggling with severe symptoms of trauma. I don’t remember the last time I slept through the night without sever vivid nightmares related to cancer. I’ve had counselling and various anti depressants over the years and unfortunately nothing has worked long term. I did manage to get my symptoms under control myself eventually. I now work for a bank and last Thursday I spent an hour on the phone to a customer who was considering harming herself after being diagnosed with the same illness, fortunately I left the conversation with her feeling hopeful and happy for the future which has bought me some joy but unfortunately had bought my trauma symptoms back and this time there back with a vengeance. Does anyone have experience of these types of symptoms or advise of where I should turn?Thank you
Welcome to the ALL corner of the forum. It is always good to have someone who has fought the battle and come out the other side.. although as you know it does leave scars that can be emotional as well as physical. I was 42 when I was diagnosed which was back in 2012 and even as an adult there was a denial about how ill I was while I was being treated.
I have been fortunate that I am almost in the same state physically after treatment and emotionally I have been pretty good as well. I have the occasional dream that i am back in hospital but that is about it. I have had a few rounds of counselling and still go every few weeks. I have found this helps me a lot and I can see that you have also used this method. Perhaps if it has been successful in the past it is worth revisiting it after your recent conversation with a customer has caused the flashbacks and trauma to resurface? Many people can suffer from PTSD after an illness of this magnitude so your feelings are quite normal after the treatment you had as a child..
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