Acute lymphoblastic leukaemia

A support group for anyone affected by acute lymphoblastic leukaemia (ALL) to come together, share experiences, and ask questions.

Hi

feline-fan
Posted by

 Hello to fellow sufferers of ALL. I have the Philadelphia Chromosome positive element

 Diagnosed  With B-ALL Ph + with ACA in June 2018.
Suffered a CVA (Stroke) in early July 2018 -  leaving mobility and eyesight issues 
July 2019 - on 1st cycle of Blinatumumab,  due to relapse during Maintenance phase .
Bone Marrow Aspirate confirmed back in remission
Sept 2019 - started 2nd cycle of Blinatumumab
Type 2 Diabetic Dx 2004. Stage 4 Osteoarthritis in both knees dx in 2013.
Paul1969
Posted by

Hi feline-fan

Welcome to the ALL corner of the community although of course sorry on having to come and find us!

I had ALL and was diagnosed back in Sept 2012.. A lot of chemo and a stem cell transplant in 2013 later I have been told I am cured.. I have a couple of longer term side effects but nothing that they aren't working on at the hospital and certainly nothing that stops me having a completely normal life!

You can read about my journey by clicking on my name  Paul1969 

Where are you having your treatment and have the hospital given you an outline of what they are planning?

Paul

What is a Community Champion?

You can speak to someone in confidence by calling Macmillan Support on 0808 808 0000 - 365 days a year 8am to 8pm It's free from mobiles and landlines. The friendly team are waiting to take your call.

 

feline-fan
Posted by

Hi Paul

 Sorry for the delay in responding 

 I’m currently under Kings College Hospital in London.

Yes I definitely have a treatment plan. This coming Friday will be my 3rd session of chemotherapy under the maintenance phase. Previous to that I was on  the consolidation phase and prior to that the induction phase.  There is currently no talk of me needing or having an SCT / BMT.

 I had another bone marrow aspirate last week, so should find out the results this week. Fingers crossed I’m still in remission 

xxx

 Diagnosed  With B-ALL Ph + with ACA in June 2018.
Suffered a CVA (Stroke) in early July 2018 -  leaving mobility and eyesight issues 
July 2019 - on 1st cycle of Blinatumumab,  due to relapse during Maintenance phase .
Bone Marrow Aspirate confirmed back in remission
Sept 2019 - started 2nd cycle of Blinatumumab
Type 2 Diabetic Dx 2004. Stage 4 Osteoarthritis in both knees dx in 2013.