Ask Caroline, a Macmillan Nurse working with people who have Leukaemia, Myelodysplasia...
A support group for anyone affected by leukaemia to come together, share experiences...
Hello all, my father is due to receive radiotherapy in his left eye area due to cancer cells still around in thst area. I just wanted to know if anyone has had radiotherapy before for ALL and the side effects if any? We are quite worried
Hi AR313 and welcome to the online community
It's natural to be worried about the potential side effects that your father might be facing. I'm afraid I don't have experience of radiotherapy to be able to help you but I noticed that your post had gone unanswered.
You could post your question in ask about radiotherapy and radiographer Kate will aim to respond within 2 working days. I'm also going to 'tag' my fellow Community Champion Paul1969 into my response to you as he looks after this group and might be able to help you more than I can.
When you have a minute could you pop something about your father's journey so far into your profile as it really helps others when answering. It also means that you don't have to keep repeating yourself. To do this just click on your username and then select 'Edit Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
All the best
"Never regret a day in your life, good days give you happiness, bad days give you experience"
What is a Community Champion?
Hi AR313 and a second welcome to the Online Community. I had a different type of blood cancer (NHL) and I did require radiotherapy on two occasions (8 zaps in total) on my face as part of my treatment journey and the treatment did the job well.
For some surface presentations radiotherapy is an effective treatment and for me l had little side effects, yes dry skin but that was treatable. He may feel tired but this can often be due to the mental stress of it all.
I have Spinal Osteoarthritis so the laying flat was hard so did require some pain meds to overcome this.
He will most likely required a full face mould to be made and used but again this is more a mind over action thing.
All the best to your dad.
Mike - Thehighlander
Some journeys take us far from home...... but some adventures lead us to our destiny - CS Lewis
Welcome to the ALL group although of course sorry that you have had to join.
I didn’t have any radiotherapy with my treatment so I can’t offer any insight with regards to that side of things.
I was diagnosed with ALL in 2012 and following the UKALL 14 protocol and a stem cell transplant in May 2013 I have made a really good recovery and was told I was “cured” last year and there was no reason the leukaemia will return. It was a tough journey during the first 18 months but it can be done.
The best advice I can give is take one day at a time and if you have questions or worried speak to your fathers medical team. The clinical nurse specialists are always a great source of information and are usually quite easy to contact.
if you have any questions regarding ALL please feel free to ask and good luck.
You can speak to someone in confidence by calling Macmillan Support on 0808 808 0000 - 365 days a year 8am to 8pm It's free from mobiles and landlines. The friendly team are waiting to take your call.
Hi Paul, thank you so much for the prompt response. Yes we are just taking it one day at a time, unfortunately dad has been going through this journey since Jan 2017. I will update my fathers jourey on my profile so everyone can see.
We start radiotherapy tomorrow so getting ready for it! He feels very confident, my dad has had a very good attitude towards all of this so fingers crossed things go well.
I will be in touch via this thread. Thanks a lot!
Hi, thank you for your prompt response! His first session is tomorrow, and yeah they have already made the full face mould. We are a little nervous but hoping for the best.
He will require 10 days of radiotherapy, each day 10min sessions to kill the leukemic cells in the area.
In terms of side effects, his oncologist said main ones will be tiredness and nausea, but all just depends person to person.
Thank you for your kind words, wish you all the best. Regards, Ana
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