Acute lymphoblastic leukaemia

A support group for anyone affected by acute lymphoblastic leukaemia (ALL) to come together, share experiences, and ask questions.

Epilepsy following cranial radiotherapy. Can I get any recompense for this?

Posted by

I got epilepsy following cranial radiotherapy.  Can I get any recompense for this?  I was not warned about this potential side-effect and it has ruined parts of my life.  Is there anything I can do, like getting compensation or something.  I saw a neurologist after the initial first fit, and the scan showed scarring to the brain.  I asked if this had been the cause, and they replied that they were 99.9% sure that this is what had caused the epileptic fit.

Posted by

Hi Srandy and welcome to the group. Sorry you find yourself here..

i had treatment for ALLmbut I didn’t have radiotherapy so I am not familiar with the treatment protocols or possible side effects. I am sure someone who may have had this sort of treatment will be along soon and may be able to help you more than me.

in the meantime you could try calling the support line On 0808 808 00 00 which is open Monday to Friday, 9am-8pm and is free to call as they may be able to help you.



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