Ask Caroline, a Macmillan Nurse working with people who have Leukaemia, Myelodysplasia...
A support group for anyone affected by leukaemia to come together, share experiences...
Hi ive just joined, and this is my first post, sorry if it’s a bit of a ramble. My husband thought he had tonsillitis, last week we were on holiday. Husband didn’t feel great GP sent him to hospital, he has been diagnosed with AML and ALL we have been informed that this is super rare. Is there anyone out there that has this.
Sorry you find yoursef posting here. You must both be in complete shock! I have only had the ALL part of the diagnosis your husband has been given. That was 6 years ago and following a stem cell transplant in 2013 I am now doing really well.
i don’t know if anyone else will be along who has had both but feel free to ask any questions you may have regarding the ALL side of things..
Good luck to you both
As a thought also try posting in the stem cell transplant forum. Whilst you are not at that stage yet and it may not be the route your husband follows there will be a lot more people who have had a lot of different experiences with leukaemia that may be of help.
Good shout Paul, worth casting the net far and wide.
The link for the Stem Cell Transplant (SCT) forum is at the bottom of my post.
Mike - living my new life and trying to make a difference
'Some journeys take us far from home. Some adventures lead us to our destiny' C. S. Lewis
SCT NHL T Cell Community Champion
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