ALL sons relapse

My son was diagnosed in 2002 with ALL in 2002 aged 8. In June 2016 he relapsed after 14 years. He has had 2 stem cell transplants one in 2016 and the other 2020. He has had two rounds of Carr t therapy and most recently immunotherapy.  He had a bone marrow in April which revealed he is now in remission. Over the years he has truly been to hell and back back knocked on the door but wasn't allowed in, I guess what I'm trying to say is never give up, embrace the good days and don't dwell on the bad , keep going x

  • Hi

    Thank you for sharing the great news that your son is now in remission. He has been on a very tough journey and he must be a real fighter and has had some tremendous support from you on his journey. Hopefully he can now put the treatment behind him and  move forward to the next stage of his life ALL free.

    Paul

    What is a Community Champion?

    You can speak to someone in confidence by calling Macmillan Support on 0808 808 0000 - 365 days a year 8am to 8pm It's free from mobiles and landlines. The friendly team are waiting to take your call.

     

  • Hi Paul, thank you for your kind message.I have just read your story, my son was also treated at Bart's and more recently addensbrookes. You have obviously been through a lot and reading story was  inspiring. My son has also had a lot of the same problems you experienced during and after treatment, you tend to think it's just you and your family that are going through hard times.

    Jane
  • Hi Jane 

    I think when you are going through the whole process either as the patient or the carer it is difficult to think about other people and how their treatment is going as you become so focussed on your journey you have to take. 

    The positive thing is you can come out the other side and get back to a normal life where the ALL is no longer who you and your son are. You know you are winning when people stop asking how you are!!

    Enjoy the days, weeks, months and years ahead.. slowly they all merge into one.

    Paul

    What is a Community Champion?

    You can speak to someone in confidence by calling Macmillan Support on 0808 808 0000 - 365 days a year 8am to 8pm It's free from mobiles and landlines. The friendly team are waiting to take your call.

     

  • Thank you enjoy your life to. 

    Jane
  • Thank you for sharing that. It helps. My son is currently having a relapse after just starting his maintenance. It’s devastating and I am trying to stay positive. My son is 30 so older than yours.