Ask Caroline, a Macmillan Nurse working with people who have Leukaemia, Myelodysplasia...
Jane is a haematology nurse with extensive experience in stem cell and bone marrow...
I may have had one transfusion post transplant but no more than that. I am not convinced that I actually had anynpost transplant but it is all a bit blurry now after the years!
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daughter had her Hickman in for a while post allo, but she was reliant on red cell transfusions for over 2 years, her blood group just had such a long way to change and also with such a lot of pre-treatment it just took its time! (She went from O Rh- to A Rh+) and they just got used to struggling with her pretty shot veins. They still struggle now! She had transfusions about every 3 weeks.
They might think about giving you white cell booster jabs if the levels don’t start to rise in a few days? If so, be ready for the bone aches, ask if they can prescribe Loratidine (an antihistamine, brand name Claritin, but it does help!) the day before they plan the jabs, and each day till it eases.
Laser in the mouth?! Gah, that sounds rotten! Why must we be tortured so? ...
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