Stem cell transplants for blood cancers

A group for people to discuss stem cell transplants for blood cancers such as leukaemia and lymphoma. This can include transplants using a person’s own stem cells or stem cells from someone else (a donor).

Life after a SCT - A Survivor's Guide

Orson
Posted by

Marvellous had auto in 2017 wasn’t easy but now I’m ok , get tired on the odd occasion, mostly positive about life , weight now going on after 2 years. Normal life as before I was diagnosed.

zumba and yoga tomorrow, day off Saturday.  Plan ahead a lot for holidays and playing golf where it’s warm. Luckily hubby and I are retired.

It took a while for my bones not to feel sore. 

Not caught a cold for 6 months! Fingers crossed , just suffering from prickly heat on my arms and face looks like I’m going to have to find a very high factor sun screen.

Fingers still a bit fizzy at the ends and a couple of toes that sometimes feel numb but I’m good and happy and positive.

had flu and pneumonia jabs this winter.
sue 

jaymacabc123
Posted by

Wow mark !  3 miles walking that’s amazing!!! Soon you’ll be back to taking a (slow)jog hopefully 

 *Learning God is in control and every day holds the chance of another miracle.*

Thehighlander
Posted by

Bump for those going through SCT and looking at what the other side looks like?

Mike - Thehighlander

It always seems impossible until its done - Nelson Mandela

moomy
Posted by

Daughter’s latest (well, apart from local radio station broadcasts, that is) news is that yet again they are jabbing her with I/G’s around 3 weekly, and will start ‘bleeding ‘ her once they end in around April, to reduce those ferritin levels, no good doing it now as they will of course remove I/G’s and they don’t want to do that! So it seems her regime is still regular hospital visits.

but she’s been booked for orchestra gigs, at present Bournemouth, London Phil later in the month. She has a few voice over projects too, plus regular studio recording sessions which she does at home (she has her own studio with all the gear for music and voice recordings, all she has to do is walk up the garden to it!) 

hugs xxx

Moomy

moomy
Posted by

Long phone chat with daughter while she was driving from Poole to Exeter this evening after her gig, she had just a few notes in the first piece of the concert (live on Radio 3) and the same tomorrow evening then she will just drive home. (The typical mobile life of a freelancer!) she was bored so it’s a chat with Mum to while away the time on quiet roads (hands free of course) and a talk about what she’s been doing, her future plans with her students at Trinity and the contrast in facilities from an old Naval college (Greenwich, which is where Trinity College of Music is housed) and her other teaching job at Royal Northern College of Music in Manchester, which of course has properly planned, soundproofed facilities. She’s only just started there this academic year, they head-hunted her! It’s a big contrast!

Also chatted about the one to one puppy training they are sorting for the 10 month old puppy. It’s difficult to commit to regular classes so this way works better for them. 

Good to hear from her and hear about future plans, that’s something that for years she didn’t feel able to do as of course for some years she was facing dying, and found forward planning really tough. That was something she really needed counselling help for, accepting that when we are able, we forward plan, knowing that anything might happen to interrupt that, but knowing that forward planning for all of us is needed to get a sense of order and purpose. 

Philosophical thoughts!

Hugs xxx

Moomy

Thehighlander
Posted by

Good to hear she is busy with what she loves to do...... but going by our youngest daughters experience in puppy training.....it looks like a 'great mystery' to me.

Forward planing? We are further down the line then some of the others who will come on to this thread.

Back 6 years ago, like you and your daughter, its was "putting our affairs in order" time............ yes, this was done but now sits on a higher shelf in our pigeon holes of life..... we can still see it but it would take some effort to reach it and take it down and fret over it...... two does the passing of time change things?

As time has went past our family have moved on from taking every day at a time, we are now looking forward more and planning stuff to do that we were robbed from doing.

Youngest daughter and family moved back from just beside Birmingham and started all over again in the Highlands as they realised that they were living in a rat-race and they were not content..........now two years on they have made a new life, new friends and two thriving businesses. Cancer in the family does effect all the family and for us all it made us all stop and think.

But oldest daughter and family have moved to Surray in the next part of conquering the UK with their business - as they had moved on from being 'close' just in case.

We are not spring chickens (sorry) so we don't look through the eyes of someone 20, 30 even 40 years younger then us....... so the future looks so different from the two prospectives.

"Sense of order and purpose"........ for me I think that if you go to bed and you have been happy with the day past......and when you wake up the next morning with the excitement that it is a new day - this is a good place to start to build the new experiences and facets of life on.

Not very Philosophical but the thoughts of a 64 something still coming to terms with having been given a second or even third chance at the living thing

((hugs)) all round...... and a great question moomy.

Mike - Thehighlander

It always seems impossible until its done - Nelson Mandela