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Ask Caroline, a Macmillan Nurse working with people who have Leukaemia, Myelodysplasia...
Jane is a haematology nurse with extensive experience in stem cell and bone marrow...
Ok, here we go. Just about to take my darling husband into Plymouth hospital to begin the SCT.
Booking in today, start of chemo tomorrow.
I shall miss him so much, just being round the house and being there for a cuddle.
Good luck and hope it goes well.
My wife was there most days in the week leading up to the SCT. The day of the transplants the kids were there as well when it happened. She then was about probably every other day after wards until I was discharged on day +15.
Her hugs helped me get through it all!
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Hi, hope all goes well and its as straight forward as it can be and that he is back home soon.
Wishing you and your husband the very best. Anything we can do to help during this tough time, we are here!
What is a Community Champion?
Fingers crossed for you both, Custard.
Lots of people rooting for you.
Love and hugs for you for all the anxious times in the next little while.....
I know it's tough, bless you, and you'll be tripping to and fro in addition to all you do otherwise, plus extra laundry and cleaning home to the n'th degree ready for him coming home.....( been there too!)
More hugs xxx
Fingers crossed all goes well! Set small goals, and keep spirits high in his room.
Love the analogy by the way!.. Although I'd consider it a software update really! hahah.
Wishing you both an uneventful transplant journey. Drink lots of water and get up and move around as much as possible. Big Hugs! x
Fingers crossed!! Hope all goes well! xxxx
So tired...I got about 3 hours sleep last night - we had a difficult and emotional day. And it's almost and hour and a half to the hospital, so a long drive. And we've only just started...
Today my husband has had red and platelet transfusions, some drugs with very long names to try to prevent side effects and is having his first dollop of chemo now.
The staff are very nice and kind though and that's good.
Worn-out Custard x
I know that incredibly worrying, frustrating, exhausting time......do take care of yourself, it's a long haul so accept any offers of help from friends and relatives, you'll need them!
Sending you massive hugs xxx
Thank you all...lovely to know there's understanding here.
Today he is having fludarabine and busulfan. Drug regime getting tougher. The worst bit of the chemo is expected to be the weekend when he has AT-G which I believe can cause really horrible side effects for a couple of days. Anyone got any experience of this?
No, not heard of that, sorry......but if it's a Melphalan replacement ask about using ice, sucking ice chips before, during and for a good while after will help prevent the worst of the mouth ulcers. It's usually the final drug in the regime.
I believe it's an anti GvHD drug. Seems quite specific.
No melphalan for my husband...and after I had taken all your ice advice on board!
I wonder how they choose drug regimes for conditioning. Do individual consultants have their personal favourites?
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