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Ask Caroline, a Macmillan Nurse working with people who have Leukaemia, Myelodysplasia...
So glad to hear your daughter is home !!
sending love and hugs
Glad to hear she's on the mend. Did she manage to finish the tour before she came home? If so: what a trooper, although I do understand how it is on the road. It gets very tight knit and as much as everybody else would want the best for her, I'm sure she'd have hated to leave ahead of time.
This is the kind of thing that I find scariest about this stuff. My doc said to me as I was leaving that she'd be "completely screwing up" my life for a year but it is more than that. My auto transplant (and the lengthy induction) a few years ago kept me off work for a good nine months - something which working for a small company now would cause difficulty - and it was a good year before I was properly back to normal(ish) and while I could easily have worked harder at my fitness in the meantime, here I am 5 years down the line only just getting decently fit. Now there's an allo with all the extra potential long-term trouble looming.
I guess it beats the main (ultimate) alternative but I'm not looking forward to it just the same.
So pleased to hear she is home. It just goes to show that you always need to be on your guard and not start to think you can totally put behind you what you have been through. Its 8 months since my auto transplant now and after 3 months I got a mixed viral and fungal pneumonia which put me back in a hospital bed for 3 weeks so I am now being very cautious with all the germs and bugs that are around.
Interesting to hear what Ian says about how he found energy levels and fitness after an auto. I am a huge amount better than I was but still find that I get extremely tired if I over do things and I need to really get my rest. Have started yoga and Tai Chi as I am sure they will help me.
Love and hugs
Thank you, Jen2, I've got everything crossed, she plans to try to come down tomorrow......
To each and every one who looks in here, I hope you all have the best Christmas possible with love, joy, peace surrounding you and your loved ones xxxxxxx
Amen to all of that. Hey, do you reckon you can catch a secondhand cold via the internet? I reckon your daughter's passed whatever she's got on to me. Or, just maybe, it could've been the chap I sit next to at the office... :-)
Bit gutted really; I was hoping I was going to do the whole year without getting sick (well, I guess I got "sick" this year but those little mutant cells lurking in my lymphatic system aren't causing me any issues and may well have been there for a decade or more so they don't count) but I just missed out. I ought to have spent today ODing on raw veggies but I'm baking for prezzies at the moment so the fridge is full of all the wrong things, and my belly is full of samples of the spectacularly unsuccessful batch of "fudge" I failed to create earlier.
Anyway, like moomy said, let's all have a great Christmas and here's to a healthy and happy 2013 for everyone!
Well this bug has also got my son during the last 10 days, It all was going so well after his Auto SCT that this "Hiccup Happened" ..... very heasy sore throat (could not speak for three day), then high temp up tp 38.7 and cough... but thank fully the worst is over now.
Lets all have a good Christmas day tomorrow.
Helen you are a ture trooper. please keep up the wonderfull support you give to all, and looking forward to 2013 with a bright sun ray in the horizon for all.
Oh, J, glad that your son is getting better, it's a nasty horrid unkind bug, isn't it?
Looks like our son now also has it (and he is normally fit and well) ......we are all going to stay with him.......but actually I suspect hubs and I will go to son's, take care of him, feed and water him, then go on up to daughters and take food and fluids to her afterwards.......
Have a good Christmas day, everyone, and hope for a wonderfully healthy and happy new year!
Oh dear, it didn't happen, we just looked after son, she has been diagnosed accurately with full blown flu and is still trying to recover, poor girl.
The more worrying thing is that a 1cm node has reared its head around her collarbone, and did show low uptake on a previous PET, she will be having a further PET next month but is now really worried. As we all are......
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