I posted on here before Christmas that my daughters SCT was on hold.
We saw consultant yesterday and we are being referred for CART-T now. Going to see someone in Manchester Royal Infirmary this week.
Just wondering if anyone else has done this.
so happy for you
Hi Alice the best start to 2020 you could wish for and I am sure it will take a while and may even feel like an anti climax, enjoy the moment if you can
Great news Alice, I am so pleased for you.
Now to focus on moving forward and building on this new foundation ((hugs))
Mike - Thehighlander
It always seems impossible until its done - Nelson Mandela
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Thats absolutely brilliant news so pleased for you. I’m waiting for the results of my second scan, first one was completely clear , but it’s still nerve racking every time. Was in hospital over Christmas & new year with a fungal lung infection , was not looking forward to being on my own all over the holidays as there was no trains up to London. However my daughter came up & stayed with me , we both said it was the most relaxing Christmas we had ever had. No cooking , no washing up & we could have a doze whenever we wanted. Still missed the rest of the family though.
love Lyn x
Thank you Lyn
Taking a while to set in. I'm glad you had your daughter with you and you had a nice Christmas. I had a nice Christmas too my family came up to London. Wish you all the best for your next scan and hope your feeling better from your infection.
I wondered if anyone could offer some reassurance or support. I've had my Car-t in December scan all clear a few weeks ago. My neutrofils were at zero couple of weeks ago and I went to hospital with an infection. At the same time I noticed a slightly raised rash on my arm had for 2 weeks now showed to oncologist at the time in hospital she didn't seem worried but was still there a week later. I showed her again she referred me to dermatologist who scared the he'll out of me and took a biopsy so now got to wait for results.maybe week or more. I am worried even though there's lots to say car-t still working. Anyone else experienced rashes after treatment?
Hi Alice, good to hear from you but sorry about having to get a biopsy. I only had SCT but skin issues were part of my journey made worse by the fact that my type of Lymphoma was a skin Lymphoma. Let’s look for this to come back as being ok ((hugs))
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