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Practical issues

Share experiences and advice on practical issues when living with cancer, such as money, work, benefits, transport, food and drink, organising support at home, or getting specialist equipment.

Making things easier fir Dad at home

Linds18
Posted by

Hi 

My Dad has stage 4 squamous cell lung cancer which has spread to liver, bones, spine and brain.

He is now having trouble getting up and downstairs and gets very breathless. He is also having difficulty getting in and out of bath/shower.

Are there any aids or support to help him with this? Where would we be able to maybe get him a reclining chair that he can sleep in and help with bathing?

He says hed doesn't want to have to go upstairs if he can help it. Luckily the bathroom is downstairs.

He also needs his feet done, and get to a dentist but he gets to tired and breathless to be able to go anywhere.

Any help or advice would be appreciated.

Thank you x

Linds18 
Mitzie10
Posted by

It sounds like your Dad needs a full assessment. When was he diagnosed, if in hospital he should have been assessed before discharge. It the diagnosis was as Outpatient then you need to get the District Nurse involved and you should be able to access them through his GP or Social Services. He will then have a full assessment which will identify all of his needs, both physical and emotional.

They will also do a financial assessment which will identify whether your father needs to fund his own care or if support is available.  It is a complex system to work through so I would start at his GP...

best wishes

 Christine x

Thehighlander
Posted by

Hi , this is a hard time for all the family.

You do need to talk with your dad’s GP to get a full home assessment done ASAP, this will be a challenge at this time of the year but put the call in when the surgery opens.

You may also want to call our various Macmillan Support Line Services tomorrow on 0808 808 00 00 covering Emotional Support, Practical Information. Clinical Information and Financial Support

((hugs))

Mike - Thehighlander

It always seems impossible until its done - Nelson Mandela

Linds18
Posted by

Hi Mike 

Thank you for your reply. Macmillan did come to speak to my Dad yesterday when were at the hospital but after getting the news he only has a few months left with us he didnt feel like speaking to them.

We are back at the hospital on Friday so I'm hoping they are there again as he has agreed to talk to them then.

Many thanks

Happy Christmas 

Lindsey 

Linds18 
The BODACH
Posted by

Hi Lindsey 

I am sorry that you've had to come to us today with the problems your dad is having and he obviously needs help as you do as his carer.

My initial suggestion would be to contact the family GP on Friday morning and ask them to make an urgent referral to the Adult Social Care Team at your local council, you should also ask them to contact their local occupational therapy team and have needs assessments carried out but I would leave it all to the GP I would suggest you contact your local County council again on Friday and speak to them yourself which will get your dad on their radar.

To contact your local County follow this link https://www.google.com/url?sa=t&source=web&rct=j&url=https://www.nhs.uk/service-search/Local-Authority-Adult-Social-Care/LocationSearch/1918&ved=2ahUKEwijjJuEudHmAhWQT8AKHXiPCFAQFjAAegQIAxAB&usg=AOvVaw1w_MuYW7Q_9yst81FiYuPI&cshid=1577299175795

It is important that you now act quickly to get your dad some help, unfortunately the wheels of local councils do turn very slowly so the quicker he is on the radar the quicker.

You should be allocated a social worker who specialises in adult care to undertake a needs assessment at this assessment, which you can be present, hold nothing back and explain all the problems your dad has and the things that you think would make life easier for him, without demanding. The assessment is very thorough and can take everything into account and at the end an assessment will be made to identify everything dad needs from practical help, financial assistance and equipment and once approved everything usually falls into place very quickly.

I found this information for you

https://www.nhs.uk/conditions/social-care-and-support-guide/care-services-equipment-and-care-homes/household-gadgets-and-equipment-to-make-life-easier/

And if you scroll down all the sections of the help that you can get you will see the following

Getting out of bed or out of a chair

  • a rail you attach to the bed (grab rail)
  • straps to help you lift your leg (leg lifters)
  • things to raise your bed
  • reclining chairs

This should be arranged by the social worker at the needs assessment.

But you should not stop at just having a needs assessment on your dad, you should arrange for a carers needs assessment for yourself at the same time to identify the help you need to look after your dad and believe me no matter how much you think you can do it all yourself you will soon find the life of a carer can be very exhausting and time consuming.

I'd like to invite you to join our Carers only group and meet with other carers in your position, being a group solely for carers you can be assured of a sympathetic ear and understanding from the very supportive members and I look forward to see you over there very soon.

If you would like to speak to one of our friendly support advisers they are available tomorrow, Boxing Day, between 9 am and 5pm on 0808 808 0000 and I would suggest that you do give them a ring tomorrow but they are available every day of the week between 8 am and 8 pm and they should be able to give you further advice.

If I can be of anymore help please do not hesitate to contact me by giving me a shout out in the Carers only group and I'll do what I can to assist you.

To give  a shout out at any time, all you have to do is type @The BODACH and when you see a blue highlighted box to the right of my name click on it

and continue with your message and I will be alerted to enable me to get back to you.

I hope you can get assistance that you both need very quickly.

Ian

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