Practical issues

Share experiences and advice on practical issues when living with cancer, such as money, work, benefits, transport, food and drink, organising support at home, or getting specialist equipment.

Living with chemo related question

DaveT88
Posted by

Hello,

I am starting the first of six sessions of chemo on Thursday to deal with Follicular Lymphoma (FL.)

The information that I have seen deals with cleaning the loo thoroughly after use as the drugs can stay in your system for 7 days.

However, I cannot find advice about washing clothes - do they get washed separately?

One of the symptoms of FL is night sweats. The drugs will be in my sweat. How harmful is this to my wife as we share the same bed?

Thank you in advance for your advice & answers.

Dave

latchbrook
Posted by

Hi and a warm welcome to the online community

I can't answer your questions, as I didn't have chemotherapy, but I thought it might be an idea to join and then post your question in the follicular lymphoma group as I'm sure the members there will be able to help.

If you'd like to do that click on the link I've created and then choose 'Join this group' on the page that opens.

I hope your treatment goes well.

x

 "Never regret a day in your life, good days give you happiness, bad days give you experience"

What is a Community Champion?

DaveT88
Posted by

Hello,

Thank you very much for the link.

I will join that discussion & post.

Best wishes,

Dave

jeanette 49
Posted by

Hi Dave 88.   Don’t worry about your wife or washing I’ve got follicular lymphoma was June when they found mine I’ve had six rounds of r chop chemo then pet scan clear at the moment apart from fatigue which I still have we all reactions from chemo the main thing you need to be careful about is infection keep out of places we’re their are loads people and children if you can and always use antibacterial hand cleaner but or there than that just carry on as normal at home just say to anyone who is visiting your home please don’t come if you have a cold etc. Good luck with your treatment.     Jeanette49 

Jeanette 49 hi just a update went for my check up and still have fluid around right lung consultant said he doesn’t know why as I’m clear of follicular lymphoma at the moment it must be something else so I have now got to wait for appointment for ct scan and see chest consultant looks like back on the rollercoaster again had my last chemo 28th of November still clear of follicular lymphoma without maintenance now what ,back to panic mode.
DaveT88
Posted by

Hi Jeanette,

Thank you for the advice.

Good to hear that your treatment did the job.

Best wishes,

Dave

Loydenc
Posted by

Hi Dave, 

Sorry you have to go through this treatment. 

I’m half way through chemo (for breast cancer) and I would just say, keep everywhere clean and stay away from anyone with bugs! I suffered badly in my second round as my partner had a cough. I was floored for 4 days with a cold and this was on top of sickness. It wasn’t nice! He’s being banished to his mums if there are any signs again! 

I work in week 3 and have my own office at work so I am away from any bugs! 

Good luck with your treatment and I hope you have minimal side effects. Everyone is different so take each one as it comes. I am ok after a week and able to do normal things for a couple of weeks although I do get tired at times. You just have to do things in moderation. 

Debbie 

DaveT88
Posted by

Hi Debbie,

Thank you for your post and advice.

My first chemo session was not too bad, just lasted for a very long time over 2 days.

I have felt quite tired since but tablets have controlled the nausea.

Fingers crossed that the chemo does the trick for you.

I did buy some surgical style masks and have no problem wearing them if and when I go out into a crowded place.

At the moment, I am quite happy to stay indoors and away from any external infections. What does surprise me is how there are 14 patients on the chemo day ward and no one is wearing masks. I will be taking mine with me when I go there next time.

Wishing you all the very best.

Dave