Practical issues

Share experiences and advice on practical issues when living with cancer, such as money, work, benefits, transport, food and drink, organising support at home, or getting specialist equipment.

Malignant melanoma

Trybepositive
Posted by

I was diagnosed in February with malignant melanoma it all began with the smallest white/pink mole on my left arm, I had surgery to remove another two cms deep cut out and my sentinel lymph node removed and unfortunately it had melanoma, after I got the bad news I was booked in too remove the lymph nodes under my armpit and above my breast a little, this operation was supposed to occur in June then was cancelled then July 23rd that was cancelled as well as the date of 23rd of August as the surgeon was on holiday, 6 weeks ago I ended up with a golf ball sized lump on my neck/shoulder (and i had a pet scan two weeks prior too this nothing there) I eventually had a date in for the operation 26th of October which entailed an 18 hour operation 12 n a half hours one day then 5 n a half hours next day , I had to have my collar bone broken and my peck muscle scraped away for the surgeons to get into the tumour to remove it and get two other surgeons from another hospital to come in too help ,  I’m in pain but after 20 days they’ve just given me silicon gel which I should have been given just after staples were removed, too massage my scars but the tissue inside my neck has gone solid and I have a phobia of my neck being touched so I’m struggling  and was told I had to do it or I’ll have to get surgery again too remove the fatty tissue , I believe if the surgeon had done the operation in June July or August as originally arranged,the neck situation could have been avoided, now I am awaiting an appointment for the breast clinic as I have a lump on my left breast this was discovered in August I have had no aftercare and have had to travel to every appointment miles away I am being treated with immunotherapy tomorrow, the question I would like to ask is has anyone else been through this ?? I don’t go in the sun I’ve never liked it so I don’t know how I even got melanoma what’s your views on my story what would you advise for me thank you in advance I’d appreciate any replies I’m 38 years of age just

latchbrook
Posted by

Hi and a very warm welcome to the online community. 

I'm sorry to read about your melanoma, something I was diagnosed with 2 years ago.

Can I suggest you join the melanoma group and copy and paste your question in a new discussion there. I'm sorry I can't link you to it as I'm on my phone but you'll find it in the list of groups. You'll find lots of people who can share experiences with you. 

Will try and speak to you there tomorrow evening 

x

 "Never regret a day in your life, good days give you happiness, bad days give you experience"

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latchbrook
Posted by

Hi

I'm now on my laptop and as I see you haven't found your way across to the melanoma cancer group I thought I'd provide a link for you. To join the group just click on the link and then select 'Join This Group' on the page that opens. You could then copy and paste your post from this page into a new discussion after clicking on 'Start A Discussion'.

Your melanoma sounds very similar to mine in that I found a few raised pink spots on the back of my left arm which I wasn't unduly concerned about. However much to my surprise it turned out to be an amelanotic melanoma. It was removed in October 2016, I was told at the end of November and then had my WLE and SLNB in February 2017. Thankfully, they were both clear so I've just been having 3 month check-ups ever since. 

I'm sorry to read though that your SLNB showed signs of melanoma. I'm a little confused though as you said a lump on your neck showed as clear in a CT scan but then you talk about having the tumour removed and having to have your collar bone broken for the surgeons to get at it. I'm presuming this was something else in addition to having a completion lymphadenectomy. Sorry if I'm being thick!

I hope your first immunotherapy treatment session went well and to answer your question of whether other people have been through what you have then the answer is yes!

Do join us in the melanoma group as you'll find plenty of Stage 3 people like yourself who are either beginning immunotherapy or have been on it for some time.

x

 "Never regret a day in your life, good days give you happiness, bad days give you experience"

What is a Community Champion?