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my name is karl
back in January this year my little boy vinnie who was only 2 at the time was diagnosed with a brain tumour called medulloblastoma
he had surgery to remove the tumour followed by high dose chemo, in August we was given the all clear to go home .
The end of September we had an appointment for a routine mri to check if it was still all clear, unfortunately the mri showed some spotting on he’s spine and we was recalled for another mri and lumber punch only to be told the tumour had come back and spread to the spine two days before he’s 3rd birthday.
we have now been told there is nothing they can do as it’s aggressive, we are now praying for a miracle I just don’t no what to do, taking each day as it comes
Morning Karl / Karl1975
So sorry to read about your little lad Vinnie - It is a really emotionally tough situation when children so young get diagnosed
Wanted to reply as this group is fairly inactive and you could have been left hanging at what is a time you need support, information and help.
Although Macmillan is a great cancer charity, it doesn't specialise in childrens cancer types (apart from providing info and links) With children's cancer it would probably be of more benefit to you all to look into some of the more Children/Brain tumour charity support sites like The Brain Tumour Charity Org UK. or the CCLG Childrens Cancer and Leukaemia Group, or CLIC Sargent.
Hope this is of some help for you - knowing Vinnie now has something going on in the spinal area must have been a huge setback but fingers tightly crossed there is further treatment like targeted radiotherapy he can be given to treat this hotspot. Has this been discussed at all ?
Hugs, G n' J
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I just wanted to send the biggest love and thoughts to you and yours, My son is 16 and is just awaiting confirmed results for a rate malignant tumour they have found in his arm, everything is so raw for us atm, so I can kinda relate to your feelings, nothing anyone says can make it any easy, but like you said, one day at a time x
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