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Living with neuroendocrine tumour

Posted by

Hi, I’m new to this group, now 2 years post small bowel resection for neuroendocrine tumour with lymph node involvement.

i have monthly self administered lanreotide injections to control the multiple seedlings in liver and mesentery. Generally well, although did go into complete bowel obstruction whilst on holiday 6 months ago.

I’m interested to hear others experiences of living with NETS. 

Posted by

Hi and welcome to the online community

Although I have no experience of livings with NETS we do have a neuroendocrine tumour group where you can ask questions, share experiences and get support from others with this form of cancer.

To join just click on the link I've created and then choose 'Join This Group' on the page that opens. You can then respond to existing posts by clicking on 'Reply' or start your own by choosing 'Start A Discussion'.

When you have a minute could I ask you to complete your profile as it really helps others when answering, or looking for other people with a similar diagnosis. It also means that you don't have to keep repeating yourself . To do this just click on your username and then select 'Edit Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

Best wishes


 "Never regret a day in your life, good days give you happiness, bad days give you experience"

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