Hi everybody, I’m new to the group & looking to chat with anyone who has lymphoma. I was diagnosed with it in January this year & feel very lonely & would like to share experiences with others. Hope to hear from you soon.
Hi Miss Butterflies. I was diagnosed with Non Hodgkin Lymphoma in Oct last year. Mines T cell and shows itself as tiny lumps which grow to open sores. Have had four lumps and had radiotherapy and chemo. Awaiting latest pet scan result. Which one have you got and how are you. Don’t feel alone as there are a lot of lovely people on here going through this awful journey too. Really helps to talk. You don’t feel so alone. Keep in touch. Lots of hugs xxx
Hi Miss Butterflies and a very warm welcome to the online community
I'm very sorry to read that you have lymphoma and that you feel very lonely. Having a cancer diagnosis is a scary time and can make you feel very lonely. There are lots of lovely people on here who you can share your experiences with and get support so you won't need to feel lonely again!
If you tell me which type of lymphoma you have I could point you in the direction of which group to join. Alternatively, if you click on 'Groups', which you'll see under the words online community towards the top of the page, and then 'cancer types' you can scroll through to find the appropriate group yourself. When you find the one you want to join just click Join This Group and you can then reply to existing posts or start one yourself by clicking on Start A Discussion.
I'm also going to tag my fellow Community Champion Thehighlander into this reply as looks after the lymphoma groups. In fact he's just written a blog about his journey with lymphoma which you might like to read.
It would also be very helpful to others when replying to you, if you could put a little bit of information about your diagnosis in your profile. To do this just click on your username and then select edit profile. You don't need to put a lot and you can edit it at any time.
Best wishes x
"Never regret a day in your life, good days give you happiness, bad days give you experience"
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Hi Miss Butterflies and welcome to the Online Community, I am Mike Thehighlander that my friend latchbrook tagged.
Lymphoma is the fifth highest group of cancers, but I need to say from the very start that on the whole blood cancers can be treated well.
It would help to to get you in the correct group so our two main Lymphoma Forums are Non Hodgkin's Lymphomas and Hodgkin's Lymphoma.
With over 80 types of Lymphomas we don't have a group for every Lymphoma type but you can connect with folks in these two general groups.
As Latchbrook has highlighted I have done a little blog for the site so have a look.
I will look out for you on both the NHL and HL forms.
Warm Highlander ((hugs))
Mike - living my new life and trying to make a difference
'Some journeys take us far from home. Some adventures lead us to our destiny' C. S. Lewis
SCT NHL T Cell Community Champion
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