My husband had a TURBT in June .He suffered terrible bleeding a week after and was readmitted to hospital with an infection. He then went last week for his followup appointment first of all they could not find the results then when they did they told him it was aggressive cancer and he would need another operation. When he asked when that would be he was told to ring in 2 to 3 weeks. He was given no contact numbers for any questions or worries. We are at our wits end as surely if it's aggressive it needs treating urgently. He is not eating much as every times he eats he promptly need the toilet and has lost nearly a stone in weight in the last 3 weeks. I am now really worried about him and don't know who to turn to for help. Has anybody else had these side effects?
Sorry to read this, and sorry I have no experience with bladder cancer to share with you. What I might suggest is that you ring the helpline here 0808 808 0000 it is open Monday-Friday from 9am to 8pm and a free phone call too.
You might also like to join our groups Bladder cancer where you will find people with more experience in this area and you could aslo join Family and friends and/or Carers Only - Discussion Forum where we deal with the impacts cancer has on the rest of us.
Other than that for now just a massive virtual hug
Hello Peacock62. Sorry to hear about the way your husband has been treated. This is not usual. Infections following a TURBT are known but rare. A follow up procedure is normal in these cases, but they need to let the first wound heal before going in again. Usually about six weeks. Your husband should have been allocated a nurse specialist (CNS) with a dedicated number to call about any concerns. It does not appear he has. He should not have to chase his own appointments, only if you do not hear anything. These are normally generated. He should also have a CT scan which is standard. The weight loss is not normal. Frequent urination is normal, but this procedure rarely affects the bowels. What you have described is not common. It may be an idea for your husband to see his GP for advice.
I see you have followed Steve's src60 advice and joined the bladder group. If you post your concerns there, you will find experienced people in this area to help. Best wishes.
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