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About to start on Ibrance and worried about side effects.

Lurcherlover
Posted by

Recently started on Ibrance and worried about side effects.

Dreamthief
Posted by

Evening  

Warm welcome to the Community hope you find all the information you need from chatting to other members in similar situations.

There are quite a few messages about Ibrance in the Secondary Breast Group here you should join.

I carried out a group search there and you can find some messages about Ibrance here (link)

All of these messages are in the secondary breast group so when you open one just click the 'Join This Group' button while you are there.

You can then start a discussion asking whatever questions you have about it. A member of the group has recently started Ibrance so perhaps she can help you out :)

Take care,  G n' J

Jtsn
Posted by

Hi Lurcherlover, I've been on Ibrance and Femara for 2 weeks with no side effects so far. I have a meeting with my chemo nurse tomorrow and will get the results of blood tests taken today so will know if blood count is raised/ lowered etc. Hopefully all will be well.

Everyone I have had replies from so far re the Ibrance have been very positive about it so hope you are the same. Good luck with it and try not to worry.

Janet

Lurcherlover
Posted by

Thankyou Dreamthief. Talking to others with like situations is so helpful. I am just coming up to first week omn Ibrance so first blood test in a week. How did yours go

Lurcherlover
Posted by

May have replied to wrong person ? Should have bee Jtsn?

Dreamthief
Posted by

Hi

Yes should have been to   I have used a name tag so they should get back to you :)

Ibrance wasn't available when my better half was diagnosed (2012)

G n' J

Jtsn
Posted by

Hi, my bloods were low but not too low to continue treatment. I've got 2 more Ibrance to take then have a week's break so hopefully bloods will recover. I have another blood test on Monday then see the Chemo Nurse on the Thursday to get next lot of meds.

I've had a couple of nose bleeds but not really bad ones and I'm very tired, other than that I've had no side effects.

My GP practice nurse collared me the other day and asked me to go in and have a chat with her. I'm doing that this morning and am a bit worried the floodgates will open as I tend to keep a fairly tight lid on things. I do my screaming at the world in private.

I'm lucky with my team as they are all so eager to help. GP said that if I need them I don't need an appointment, just phone and they'll be there for me. I've read such difficult comments from people unable to get help when they need it.

Let me know how you're getting on, hope bloods are ok for you

Janet x

Lurcherlover
Posted by

Hi. Thanks for your reply. It does help to talk to someone in similar circumstances. Hope your appointment gives you what you need.

Yes i have just done my first week on Ibrance and finished two weeks of radiotherapy 3 weeks ago. I have only noticed being a bit more tired and joint pain at base of my thumbs where I have osteo arthritis anyway.

What is worrying me a bit is that pain has increased in my hip where the secondary is. I need to use crutches because of fracture and have gone back to using them indoors because I feel steadier and it slows me down. The thought being that pain is less likely if I am more careful. Think I will phone my specialist nurse tomorrow.

Feels better having voice this to someone. Will let you knowvhow i get on.

Hope your week off meds helps x