Recently started on Ibrance and worried about side effects.
Warm welcome to the Community hope you find all the information you need from chatting to other members in similar situations.
There are quite a few messages about Ibrance in the Secondary Breast Group here you should join.
I carried out a group search there and you can find some messages about Ibrance here (link)
All of these messages are in the secondary breast group so when you open one just click the 'Join This Group' button while you are there.
You can then start a discussion asking whatever questions you have about it. A member of the group Jtsn has recently started Ibrance so perhaps she can help you out :)
Take care, G n' J
Hi Lurcherlover, I've been on Ibrance and Femara for 2 weeks with no side effects so far. I have a meeting with my chemo nurse tomorrow and will get the results of blood tests taken today so will know if blood count is raised/ lowered etc. Hopefully all will be well.
Everyone I have had replies from so far re the Ibrance have been very positive about it so hope you are the same. Good luck with it and try not to worry.
Thankyou Dreamthief. Talking to others with like situations is so helpful. I am just coming up to first week omn Ibrance so first blood test in a week. How did yours go
May have replied to wrong person ? Should have bee Jtsn?
Yes should have been to Jtsn I have used a name tag so they should get back to you :)
Ibrance wasn't available when my better half was diagnosed (2012)
G n' J
Hi, my bloods were low but not too low to continue treatment. I've got 2 more Ibrance to take then have a week's break so hopefully bloods will recover. I have another blood test on Monday then see the Chemo Nurse on the Thursday to get next lot of meds.
I've had a couple of nose bleeds but not really bad ones and I'm very tired, other than that I've had no side effects.
My GP practice nurse collared me the other day and asked me to go in and have a chat with her. I'm doing that this morning and am a bit worried the floodgates will open as I tend to keep a fairly tight lid on things. I do my screaming at the world in private.
I'm lucky with my team as they are all so eager to help. GP said that if I need them I don't need an appointment, just phone and they'll be there for me. I've read such difficult comments from people unable to get help when they need it.
Let me know how you're getting on, hope bloods are ok for you
Hi. Thanks for your reply. It does help to talk to someone in similar circumstances. Hope your appointment gives you what you need.
Yes i have just done my first week on Ibrance and finished two weeks of radiotherapy 3 weeks ago. I have only noticed being a bit more tired and joint pain at base of my thumbs where I have osteo arthritis anyway.
What is worrying me a bit is that pain has increased in my hip where the secondary is. I need to use crutches because of fracture and have gone back to using them indoors because I feel steadier and it slows me down. The thought being that pain is less likely if I am more careful. Think I will phone my specialist nurse tomorrow.
Feels better having voice this to someone. Will let you knowvhow i get on.
Hope your week off meds helps x
Am just finishing my last tablet of Ibrance today and my blood tests of last week are showing low WCC. I feel relatively okband hope in acweek to start the next cycle. Any bodybexperiencingbthis eo earlynin treatment. TIS
I've just started my 2nd cycle of Ibrance. Side effects have been minimal except for being very tired. My bloods were also low but was ok to continue. Told to keep away from infection as much as possible and to phone immediately if my temperature goes up which is fairly standard advice for us special ones!
Hope all goes well for you xx
Hi, my gp surgery haven't been any help at all, yours seem really good, my McMillan team seem good, How are you at sleeping,,,,rosa
I sleep fairly well but I also have to take Amitriptyline and paracetamol & codeine at night so that helps to knock me out.
I've just started my 3rd round of Ibrance, had to have an extra week off as my white blood cell count had dropped too low. My chemo nurse has told me to do the things I want to do and drop as much as possible when I'm tired. It gets frustrating when I'm used to getting on with things. Thankfully I have a brilliant family who are watching me like hawks to make sure I do as I'm told and step in when needed.
I had a very good Christmas as no-one let me do anything except open presents and eat.
Hope everything is going well for you
If you have any questions about Macmillan, or would like to talk to someone about cancer, we have a team of experts
who can help.
© Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man
(604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company
number 2400969. Isle of Man company number 4694F. Registered office: 89 Albert Embankment, London SE1 7UQ. VAT no: