New to the site

If you've just joined up and aren't sure where to start, this is the group for you. Tell us a bit about what brings you here, and don't be afraid to ask questions. Someone will be on hand to welcome you and point you in the right direction

Just diagnosed with breast cancer

Mazza10
Posted by

Hi everyone, just told I have her2positive cancer and will have chemo first,surgery then radiotherapy. Now being sent for bone scan and ct scan and lymph node removal on 2nd June. Everything is happening so fast, is that a good or bad sign? I thought I could find some answers here but to be honest I don't understand half of the talk or abbreviations used.Am so scared.

Alleybee
Posted by

Mazza10 sorry to hear your news but don't worry things get done fast it's a good thing it's natural to be scared you're not alone wishing you good luck it's Alley I'm new to this online thing.

Mazza10
Posted by

Thanks Alley it means a lot to have a reply. I am very new to online stuff I don't even use facebook!  I wish you well for the futurexx

aculuz65
Posted by

Hi Mazza10

  I do understand how you feel with the volume and pace of information. I myself when through this too, what I call emotional roller coaster . Have a 1-2-1 chat with your clinical nurse specialist ( if you have one) who will be able to explain at a slower pace(I hope). I also found reading the online community forum/ blog helpful too. Though must confess i`ve been reading long before I signed up. very helpful and supportive. 

Best wishes and hope things become much  clearer for you.

Mazza10
Posted by

Thanks Aculuz65. I was only diagnosed on the 8th may and since then have as you say been on a roller coaster ride.Have had more bloods/ecg/heart ultrasounds/x rays/more mammograms/gel markers than I ever knew existed! now bone scans and ct scans/surgery on 2nd June and that's all before chemo starts.Maybe its good its all so quick, but I can't help thinking too quick aren't they telling me something. Meeting my breast nurse on Wednesday so hopefully will get more info. They say can't tell me when chemo starts until all results in. x

ParaArcher
Posted by

Hi Mazza 

Going fast is good.  It means they are on the ball to get you treated as quickly as possible.  Always see that as a good sign. 


Also, if you cannot get answers to medical terminology, go to the breast cancer section and ask.  There a literally hundreds of lovely people happy to answer those questions, to allay your fears so you don't have to wait until the next day to make a phone call or even a weekend.  


Also, when the time comes for whichever treatment you embark on, chemo, surgery, etc.  The ladies will give you loads of advice to get you ready.   


Remember, they've all been where you are now. 


Take care, breath and each day as it comes.  That's all any of us can do and it works. 


Much love to you.  Xxx

Dreamthief
Posted by

Morning  

Warm welcome to the club nobody expected to join :(

No doubt this is all very overwhelming and scary for you at the moment - after going through the terrible waiting results period they now take the brakes off and send you hurtling into the unknown ?

Sounds very much like you have been diagnosed with the same as my wife had 5 years ago (this month) As most here will tell you the treatment can be tough at times but is do'able - so do be prepared to be in this for the long haul.

You will be on Herceptin for a year but it isn't a chemo drug so the side effects are not so debilitating.

If you click the coloured text it will take you to a BC Glossary I put together ages ago, it's just had an update, all the links still work. It is a steep learning curve but try not to overload yourself, as others have said just take it a week at a time max, day by day is better.

Do please come and join us all in the very active (and friendly) Breast Group (link) you will find to be a great move for support and advice - and of course just having a chat, or a rant :)  When the page opens just select 'Join This Group' and you can create an intro and ask whatever questions you may have as we're all here to help.

Hope this is of some help, look forward to chatting in the breast group at some time.

Take care, G n' J

Alleybee
Posted by

Welcome. Take one day a time one step at a time every thing they're doing is super fast and efficient to help heal you and keep you safe trust to that Mazza10 keep us posted healing thoughts for you big hugxxx

Mazza10
Posted by

Thanks to all of you.Had more info today from my breast nurse am going to join the bc group that dream thief said.. see already I used abbreviations! xx

Alleybee
Posted by

Awsome abbreviating like that!

how are you feeling today? You getting sleep? Sleeping is hard for me. Have a good day darling Mazza10 xxx

doggymum
Posted by

Hi Mazza,

I am a newbie to the group too and am not very technically minded but have also joined the BC group and am already finding people to be wonderfully supportive and helpful.  This is my second cancer, first was 20 years ago and it seems like a distant bad memory. Now, like you, its back on the rapid treadmill of scans and tests.  

Its good that they are getting you sorted so quickly, mine has already been a month and I just want the lump out!   Take each day as it comes, get plenty of rest and talk to family members and friends if you can.  Visit these pages and ask questions which is what I am doing. 

Take care and keep us up to date with all your results, it is a very scary time, I am scared too but we will get through this, positive thoughts and energy coming your way from me.

Karen xxx