Pancreatic cancer

Hi after 18 months ago helping to look after my daughter who had breast cancer had a mastectomy/ reconstruction then the chemo/radiotherapy which was heartbreaking. As she received her last radiotherapy and we were going to celebrate I was diagnosed with Neuroendocrine pancreatic cancer which is terminal. Life has been a nightmare. I have received now two types of chemo the first not working but this second type has shrunk the tumour. They are sending me to a London hospital for a radiation scan I think it’s called but was expecting bad news from the oncologist I didn’t take in what she was saying. Anyway I’m sending hugs to you all sorry this seems a bit long winded 

  • Hi  and welcome to the Online Community, although I am sorry to see you finding us and so so sorry to hear about your diagnosis. 

    A terminal cancer diagnosis will indeed bring a lot of confusion, stress and many questions but talking with other people who are on the same type of journey helped a lot.

    The Community has many dedicated support groups so can I direct you to our supportive Living with incurable cancer - incurable patients only group.

    Follow the link I've created above, join the group, then hit ‘start a discussion’ and you are ready to go.

    You could then copy and paste the information from this first post into your new discussion or you can just join in with existing ‘Discussions’ by clicking on 'reply'.

    It’s always good to talk, so can I highlight the Macmillan Support Line on 0808 808 00 00. This service covers Emotional Support, Practical Information. Clinical Information, Financial Support and Work Guidance mostly open 8.00 to 8.00

    Our Online Information and Support Section  is a good place to find information covering cancer diagnosis, treatments and pages covering most types of cancers.

    All the very best and a warm ((hug))

  • Hi Kerry, so sorry to hear about your recent diagnosis.  I am in a similar position to you, having nursed and cared for my older sister who had advanced breast cancer.  We did not think she would pull through and now 2.5 years post surgery her prognosis looks much more positive.  I am having another scan at the end of the week which I am sure will show PC and because of Covid I have been left too long without diagnostic testing so it is likely to be terminal.  I am really not sure how I will cope both mentally and physically and it all seems surreal.  Can I ask what symptoms you had and what lead to the diagnosis? It is good that  they are sending you to a specialist centre.  Thinking of you and wishing you well with the treatment. 

  • Hi Jo 

    I am also sorry to hear you are having such a tough time. This disease is cruel and just turns people’s lives upside down. My first  symptoms were pain in the left hand side especially after eating. I then started to lose weight. It took a while before I got a scan but that then showed the PC which just left us in shock. I actually thought I had gallstones. I have tried to stay positive I don’t read anything about it on the internet. I am lucky to have the most amazing family that support me. I’m determined to make the most of every day I have but obviously there are some down days which we have a good cry then pick ourselves up and carry on. It’s a rollercoaster of emotions but it’s so important to try and keep positive. Please anytime you have questions or want a chat I’m here.  As my daughter has been through this she totally understands what I’m going through which will be the same with your sister. Sending you a hug. Xx

  • Thanks for your lovely uplifting message Kerry.  What treatment are you having and how is it going?

    Sending you lots of love.  Jo

  • Hi Jo sorry for not replying sooner. Had some chemo and left me feeling very tired. I am on 5FU Folinic acid and irinotecan. i go and have about 3 hours, then have a bottle of chemo connected which then is disconnected two days later. I thought I was on the last one but they have added another two cycles as the tumour has shrunk. When do you get your results? Please let me know how you get on. Big hug coming your way. Xx

  • Love and hugs to you too Kerry.  Hope the rest of your treatment goes well and that the tumour continues to shrink. Still waiting for results, will let you know how I get on.