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Biopsy results are in,awaiting a phone call and terrified

Spicecylce
Posted by

Hi,

I posted on here a little while ago about a possible rare cancer in my knee. I had a biopsy 2 weeks on Friday.i called my gp surgery at 2pm today and the receptionist said the results are in but she isnt allowed to tell me.she offered a phone consultation for Friday,but I asked if I could find out sooner as my anxiety is pretty high and she said she will try to get a gp to read the results and get back to me

I'm a quivering wreck. I'm literally staring at my phone feeling sick awaiting the call,and my goodness I'm so scared. I dont really have anyone I can share my worries with apart from hubby so I have come here.i shall let you know my results 

Thankyou for reading 

Thehighlander
Posted by

Hi , I do remember these times very well and in reality you have no control over what is said..... but you can control what you do once you get this information - good or not so good the Community is here to help you out ((hugs))

Mike - Thehighlander

It always seems impossible until its done - Nelson Mandela

Spicecycle
Posted by

Hello thehighlander 

Thankyou for responding,yesterday was awful,the surgery didn't actually have my results,the receptionist was wrong,it was just the report from what they did 2 weeks ago tomorrow,I was then told by the receptionist that my gp told her to to tell me to chase my results,which I did and was told by the hospital that my gp needed to call pathology,anyway the surgery has told me they have now spoken to histology and they have looked on their screen and apparently my biopsy results are not ready to be reported yet? They will be this morning chasing them up and getting a date when I will know if its sarcoma or benign mass, I'm worried as the specialist who took it said 7 to 10 days,so I'm scared that it's bad news and as you say there is no control is there,its out of my hands,unfortunately I suffer from anxiety disorder so this is driving me insane with fear,dark worries and the what ifs 

Jo

Thehighlander
Posted by

Hi again Jo, sorry to hear the results are not ready - very frustrating but unfortunately very common and yes it truly can feed anxiety.

You may need to look at this in a different way and this is based on 20 years having CT/MRI scans

When scans are done the Radiologist doing the scan can actually see if there are 'obvious' and 'urgent' issues and can, if required, 'Red' light the scan so it jumps to the top of the Consultant Radiologists long long list.

I have had both scenarios over the years with scan results taking a weeks to come back.

At times these scan often having to go before an MDT meeting that only happens once a week. So we have developed a "No news is good news" mind set........ as is based on having had 'the' phone call the following day after a scan from my team to say "come in - now"

I often say this on the Community to folks just like you - you do need to look at how you position yourself mentally.

Imagine a line with Positiveness at one end --------------------- and despair at the other. You need to Stan firmer in the middle os slightly nearer to the Positive end as this does make this more manageable.

Please come back at any time as there is always someone around - even on Christmas Day ((hugs))

Mike - Thehighlander

It always seems impossible until its done - Nelson Mandela

Spicecycle
Posted by

Hi thehighlander,

Just an update,the gp surgery has just called,apparently some of my biopsy  results are back,but not all and they have arranged for me to have a telephone call(I had the choice of telephone or go in) for jan the 15th. They said if more results came back before then they will let me know. I have to say I have such a bad feeling now, I can only imagine why I have part results,if surly they were benign I would have them all?

Hope all is well with you:)

Thehighlander
Posted by

Hi again, these pathology results can take various amounts of time and often are sent to different labs..... well it was the case with me.

Yes, they may well be rechecking something but from my point of view - it's far better to double check then to go forward not having ALL the information in place. 

Hard to not over think this but until you have the results it is out of your hands.

I am doing very well and do try and have a good Christmas.

Mike - Thehighlander

It always seems impossible until its done - Nelson Mandela

Spicecycle
Posted by

Hi, 

Hope you had a good xmas. I was called on dec 24th to say some results were back,but not all,and that I would have my results today jan 15th and sooner if they came in. I am awaiting the call,but the post has just arrived and I have the same procedure booked for next fri. I can only assume its inconclusive :( I really am struggling mentally now and needed a place to vent 

Thehighlander
Posted by

I do feel for you but this does often happen.

I had to have 6 biopsies over 12 months before we got clear information from the pathology. Let’s look for this one to come back with clear information.

Mike - Thehighlander

It always seems impossible until its done - Nelson Mandela

Spicecycle
Posted by

Thankyou Mike

I just in my heas fear this is cancer,and the longer it takes the worse the outcome?

Thehighlander
Posted by

I would always advise to err on the positive side even if this does turn out to be cancer as these are more treatable than ever before.

Mike - Thehighlander

It always seems impossible until its done - Nelson Mandela