Don’t really know where to start. My dad has been diagnosed this week with a malignant skull tumour that has spread from the outside in ( unusual from what I’ve read) . It hasn’t permeated the brain but has put down roots and appears to be quite aggressive. This was more of a surprise because initially the surgeons thought that they were removing a sebaceous cyst during a routine operation on Wednesday. It’s all happened so quickly.
This will be removed in 2-3 weeks . It’ll be followed by chemo/ radiotherapy. I think I’m struggling because the doctors aren’t due to make final decisions until 21/10.
I should add this isn’t the 1st time that I’ve had to deal with a cancer diagnosis - my mother has had both bladder cancer and cancer of the womb. I can’t seem to find so much about skull tumours - or at least anything that makes sense.
Any advice / experiences would be appreciated.
Hi and welcome to the Online Community, although I am sorry to see you finding us and so sorry to hear about your dad. This is such a hard time for all the family bringing stress, confusion and questions but talking with people who are on the same journey can help a lot.
You may want to follow this link to our Brain tumours group as this will open up your concerns to a wider audience who know exactly what you are going through at the moment.
Just follow the link above, hitting ‘Join the Group’ tab just under the main group name, then go to the 'Start a Discussion' tab and set up your own Discussion and introduce yourself to the group - you could just copy an paste what you have in this first post.
You may find our various Macmillan Support Line Services to be helpful - call them on 0808 808 00 00 This free service covers Emotional Support, Practical Information. Clinical Information, Financial Support and Work Guidance mostly open 8.00 to 8.00 but check the link.
You may want to put your question about the condition to our ‘Ask an Expert’ section where you can post questions to our mostly Volunteer Experts but please allow 2 working days to get a reply.
Our Online Information and Support Section is a good place to find information covering cancer diagnosis, treatments and pages covering most types of cancers.
When you feel up to it try putting some information in your profile. This really helps others when answering. It also means that you don't have to keep repeating yourself. Just click on YOUR username, select 'Edit Profile'. Put as much or as little in your profile and you can amend it at any time - you can see members profiles by hitting our forum names.
All the very best.
