Introducing myself

Hi

welcome! This isn’t a club anyone would want to qualify to join but it’s a lifeline to so many of us. There are folks here with a similar diagnosis to you. I was told I had incurable womb cancer three and a half years ago so a bit different to your diagnosis. I think all of us have in common the shocking experience of being told there’s no cure and working out how to live with that. 

So please feel free to share how you’re feeling. It is scary and it made me jolly cross too. Furious, if I’m honest. 

I wonder if a slightly different way of thinking about it might help? These days there are so many new treatments being developed that are extending the lives of people like us that the notion of being “incurable” is being replaced with the idea of being “treatable but not curable”. I am well past my sell by date and this weekend saw my older daughter off to university. I did not expect to live this long. So yes, hang on to the hope that you’ll be around for your family for a good while yet.

I will stop there. I hope to get to know you better - even if it’s virtually 

xxx

PS it’s really helpful if you fill in your profile. It stops you having to repeat yourself too often. Just click on your name and follow the instructions 

xx

Hi thank you so much for your message ,it has helped  . Yes would be nice to get to know you better virtually ,a friendly voice helps xx 

Hi

I am an idiot with idiot’s disease. I nearly forgot - he best place to get support is in the group living with incurable cancer. Click the link, copy and paste your intro here if you don’t want to do a new one and the gang will make you welcome 

https://community.macmillan.org.uk/cancer_experiences/living_with_incurable_cancer/discussions

For more specific lung cancer info, head over to the lung cancer forums. There’s a secondary lung cancer group and a lung cancer group 

https://community.macmillan.org.uk/cancer_types/lung-secondary-cancer/

https://community.macmillan.org.uk/cancer_types/lung-cancer/

Xx

Thank you for your help  x