Hi All,
My sister is has received a reoccurance of a brain tumour after 17 years. She is so incredibly brave and doing all she possibly can to fight this, but I am feeling so angry on her behalf! Of course I hide this feeling when she is around, it's not helpful for me to be angry when she is around, so I bottle it up and do all I can to help but in the recessess of my mind I want to shout out and scream "why her, AGAIN!!" My precious sister has to go through another battle and I feel so bitter and cross about that. I know that lots of family members feel this way, after the shock faids, but I can't seem to get over this. Have any other carers gone through such experiences?
Thanks
Annie
Hi Annie and welcome to the Online Community, although I am sorry to see you finding us and so sorry to hear about your sister.
Having been on my cancer journey for over 20 years I do understand that "I am sorry to say......" meetings with my Consultants. My wife, over the years has got used to these moments and as we can't control the medical side, we concentrated our energy in getting through and out the other end of treatment in one piece.
We also found talking with people who are on the same journey can help a lot.
With this in mind can I direct you to this links to our Brain tumours Forum where you will connect with people who understand the journey your sister is on. You can ask the folks questions about tests, treatments and what to expect during the months ahead.
Follow the link above and join the group by hitting the ‘Join the Group’ tab just under the main group name and it is worth indicating how you want to receive email notifications when someone answers your posts.
Go to the 'Start a Discussion' tab just under the main group name and set up your own Discussion and introduce yourself to the group - you could just copy an paste what you have in this first post.
We do have these forums where you can connect with others supporting family and friends through their cancer journey: Carers Forum and Friends and Family Forum.
You may find our various Macmillan Support Line Services to be helpful - call them on 0808 808 00 00 This free service covers Emotional Support, Practical Information. Clinical Information, Financial Support and Work Guidance mostly open 8.00 to 8.00 but check the link.
We also have our ‘Ask an Expert’. section where you can post questions to our mostly Volunteer Experts but please allow 2 working days to get a reply.
Talking to people face to face can help a lot so check to see if you have any Local Macmillan Support in your area or a Maggie’s Centre as these folks are amazing.
When you feel up to it try putting some information in your profile. This really helps others when answering. It also means that you don't have to keep repeating yourself. Just click on YOUR username, select 'Edit Profile'. Put as much or as little in your profile and you can amend it at any time - you can see members profiles by hitting our forum names.
All the very best.
