My husband diagnosis is as above inoperable terminal aggressive tumour . Given 6-12 months with treatment .
6 weeks of intensive chemo and radiotherapy and the tried one lot of chemo but was extremely fatigued and mobility confusion Increased.
Finding it difficult with personality and behaviour changes , everyone telling us what we can and can’t do .
my husband had changed so much and although have had support he is reluctant to accept help as he thinks he can do everything as he could before , I’m battling reality of this trying to support part of my husband that believes he can still see drive cook and work but isn’t able too . I have been told not to contradict him and give hope but difficult when you can see the changes.our life is very different ,I can’t believe that we have to go through this cruel cancer as a family and resenting the fact that I’ don’t count in this whole situation.
my husband was my strong gentle secure enough giant , to changeable Incredible Hulk verbally abusive because of personality changes and behaviour but he still has capacity professional opinion . All I asked was for respite as I’m very exhausted and poorly but he refuses to accept but I can’t leave him on his own and we argue about things that are not safe but I’m trying to compromise but difficult as he was mechanic and lorry driver fiercely independent and feels his life is total stripped away, he says that he’s just waiting to die and not allowed to to work but he feels able to drive , etc .. brain telling him he can but physically and cognitively cant
