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Oesophageal cancer

Posted by

Hi, I was diagnosed with oesophageal cancer on 17/5/2019, so just over a week ago. I have already had a pet ct, normal ct, endoscopy and endoscopic ultrasound. This is all in just 3 weeks since I went to see my GP. So as you all can probably imagine I am still in a state of shock. I am due to see an oncologist in the next week or so and will then find out when my treatment starts. I have been told I will probably have chemo followed by surgery. I don’t know quite what to think or feel at the moment. I am very grateful that all scans have been done so quickly but the speed of it has been unnerving. I am not sure that this has all sunk in yet, all I know for sure is that I am terrified of the next few months.

Posted by

Hi  and welcome to the Online Community, although I am so sorry to see the circumstance that brought you here and so sorry to hear you are starting treatment for oesophageal cancer.

A cancer diagnosis can bring a lot of stress on a family but talking with people who are on the same journey will help a lot.

I see that you have joined our Gullet (oesophagus) cancer Forum, this is the place where you will connect with people who understand the journey your are on. You can ask the folks questions about treatments, what to expect.

The BEST WAY to get support is to go to the 'Start a Discussion' tab just under the main group name. Set up your own Discussion and Introduce yourself to the group - you could just copy an paste what you have in this first post.

Have a look through our various Macmillan Support Line Services then call them on 0808 808 00 00 to be very helpful covering Emotional Support and Practical Information. Clinical Information and Financial Support and Work Guidance mostly open 8.00 to 8.00 but check the link.

We also have our ‘Ask an Expert’section where you can post questions to our mostly Volunteer Experts but please allow 2 working days to get a reply.

We also have our Online Information and Support Section where you will find some great pages covering the cancer diagnosis, treatment and information pages covering most types of cancers.

Talking to people face to face can help a lot so check to see if you have any Local Macmillan Support Groups in your area or a Maggie’s Centre as these folks are amazing.

It is worth putting some information in your profile. This really helps others when answering. It also means that you don't have to keep repeating yourself.

To do this click on YOUR username, look to the left and select 'Edit Profile'. Put as much or as little in your profile and you can amend it at any time - REMEMBER hit the big green SAVE before you leave the page. If you're not sure what to write you can take a look at any members profiles by clicking on their username.

All the best.

Mike - Thehighlander

It always seems impossible until its done - Nelson Mandela