Hi daloni and anndanv and anyone else seeing the night out.
I thought I would join the night shift tonight as I'm struggling to get to sleep. It's been very erratic recently. I usually get about three good hours then anything after that is in one to two hour bursts. Unfortunately it leaves me feeling exhausted the next day so I don't get much done.
I hope that you are both doing as well as you can at the moment. We are a lot more relaxed here now my MIL has gone back to my wife's sisters where she was before getting trapped by the lockdown. At least I can crash on the settee now during the day.
All the best,
Well good morning fellow night hawk! I'm sorry to hear you are struggling with sleep, Daloni, Tvman, people from other time zones and I are usually around at this time! It's a horrible feeling during the day when you haven't had enough shut eye at night, I've just gotten used to it. I am also one of those who can't sleep on a chair or couch, good for you if you can. Why couldn't you lie on the couch when your mil was there, it's your house, do you just feel uncomfortable when she is there?
Do you know what is keeping you awake? I hope it is not pain! How have you been during lockdown, have you been for some fresh air or just stayed in the garden? If you have one! I hope by this time you are back to sleeping soundly as it makes it a long night when you dont sleep! I hope this doesnt happen to you often! How are you doing, are you on any treatment or like me stopped the meds?
The problem when my MIL was here was that there were 4 of us in a two bedroom house. My wife was working online in our bedroom, my son was online at school in our front room where he was sleeping. Unless i told the MIL that she had to go to her bedroom i would have been trying to go to sleep in the room that she was sitting in, not very comfortable.
Thankfully it is not pain keeping me awake. When I am on my medication it just disrupts my sleep. I have an intermittent treatment as part of a trial and have been back on them for 6 weeks after a six month treatment break so it seems to be a bit worse this time. I have also been struggling with anxiety for some months now. It is not related just to the cancer although I'm sure that plays a part. I had seen my GP for a referral long before the shut down but they can take some time to come through and then of course we went into lockdown and demand for counselling went through the roof. I have been told nothing is available in this area now. Funnily enough most of my anxiety is when dealing with others which the lock down actually made easier for a while. Unfortunately tonight when I lie down my head starts whizzing and none of my usual tricks are slowing it down.
I can and often do sleep in a chair and am going to have another drinking chocolate and try again in a minute. I sometimes sleep in the chair to avoid disturbing my wife.
I've got my Asda delivery arriving later this morning. It's a bit hard to estimate how much room it will take up when it is a list rather than in a trolley and I wasn't allowed to buy anything for the freezer this week as I have managed to totally fill it to the brim. We have been trying to eat meals which use as much as possible from the freezer to create a bit of space.
Good morning Gragon
I see Annette has just posted, a message flashed on my screen.
I feel for you, I'm a 1 to 2 hour sleeper these days, my sleep is disturbed violently by arthritic pains as well as nerve pain caused by my back condition, spinal stenosis, and I know the hazy daytime struggles only too well. When I was working, before the cancer and spinal stenosis condition, I sometimes felt similar during my 35 years night working if I didn't get enough daytime sleep.
I'm glad you have the settee back. My FIL used to commandeer our settee when he visited our house. I also fondly recall when we stayed with my outlaws during the 9 or so months we lived with them whilst our house was being built. On my return to their house after work, I used to leave the morning paper that I had bought on the kitchen table. As I was preparing my breakfast I was frequently dismayed when I turned round and there he was, engrossed in my paper. Not only that but as I ate, my time was interjected by my FIL reading snippets of items in the morning paper. In addition, after breakfast when I went to bed and usually read the paper, my FIL still had it. Got to say though that he was a good man, always helped people including me many times and gave me (and my wife) the land on the farm to build a house, a very decent man.
I started this at 3am but unfortunately couldn't stay awake Gragon which is why I have said at the beginning that Annette has just posted! I tried, and I tried also at 4am and 6am too.
Take care mate and stay safe.
Sorry to hear that you are having trouble sleeping because of the medication but I hope it helps long term.
Annetteanndanv was querying why your MIL was commandeering the settee and I was expecting your answer to be the same as mine ie my FIL was so relaxed at my house because we had a good relationship that he stretched out. My MIL though didn't take my stance, she shouted at him to move and let me sit down and like any other sensible man, he obliged lol :)
Take care mate and stay safe
Me again! Sorry, meant to say that my wife has our freezer full too. It never ceases to empty, sometimes I get a bit annoyed because you can't get 1 thing more into it so we decide to get nothing more frozen food. We get a little space but then the offers get bought and it fills again.
Our Sainsburys delivery comes today. In Northern Ireland the list of extremely vulnerable people still hasn't gone out to the supermarkets because we don't have the same system of collecting names of extremely vulnerable people but "we're working on it" they say. Disgraceful but typical.
I turned to Sainsburys helpline about 3 months ago and after 40 minutes a very pleasant young girl answered and listened to my predicament. She took my details and a couple of days later, an email came from Sainsburys saying that they would add me to their list.
A couple of weeks after that, Sainsburys said that they were guaranteeing all extremely vulnerable customers a delivery once a week. So thank you very much Sainsburys, and I've already told their customer service.
My wife searched for a chest freezer at a good price and we had it delivered yesterday and we have it in the garage. So now we have a lot more room. Photo below. Take care mate and stay safe.
I also got delivery of a new freezer this week to help with the storage. We are getting fresh fish delivered from Cornwall which is lovely and can store extra bread and ice cream.
i and shielding and have had letters but apart from Asda none of the supermarkets contacted me. I rang Tesco’s and now get a Tesco slot as well but Waitrose weren’t helpful when I rang them
Good morning Everyone! Gragon I hope you have enjoyed having your settee all to yourself! tvman & ruthjp good for you getting new freezers! I have an upright freezer (over 6ft high) and love it. Definitely agree you need extra space for the ice cream!My sister phoned Wednesday night to say she would pop over Thursday afternoon and have tea in the garden, which is now allowed. I made shortbread but 15minutes after I put it in the oven, I could smell burning! It was meant to be in the oven for 1 hour! It turns out my oven has broken and instead of cutting off at what the temperature had been set for, it just kept heating and heating! So I just made some Crispies Bars as they are a traybake and you don't use an oven! My sister was delighted and said she hadn't had them for agesI our son popped over, assuming I'd be on my own as my husband was working night shift last nght and was asleep. They had some with tea/coffee and what was left, split between them to take home!!
How did you all manage to get freezers delivered!!! I looked on the internet earlier for a new cooker and all they can do is deliver the cooker to your doorstep or garage. They are not allowed to install it or come in to take the old one away! Now what good is that!!! I'm not sure when this will change! Probably not until stage 4! So that's me without an oven until then!
I do hope everyone is sleeping by now! I'm off to do my jigsaws!
I have been chuckling here as I read about how we all sleep in one to three hour shifts and all our freezers are overflowing. Same here!
It makes me wonder whether the idea of an ideal 8-hour sleep is a myth. I’ve read more than once how a medieval night consisted of a long sleep followed by a break and food followed by a short sleep. Maybe we would feel less stressed about sleep if we accepted that we just have a different sleep pattern. Although ghost would leave unsolved the conundrum that three hours sleep or less a night just isn’t enough.
I am here and wakeful after having chemo today so I am on steroids again for three days. I’m pleased to report that it was entirely uneventful.
Good morning Daloni, I see you were awake was it around 4ish? I'm wondering because I know the clock on here is slow. Does everyone have blackout curtains for this time of year? The sun starts to rise here 4am and doesn't go down until about 10.15pm. I wonder if we are awake because there is light in the sky so early! Although on saying that, I've not been to sleep yet. I'm so pleased your chemo was uneventful, let's hope it stays that way. Can I ask, are you on steroids all the time or just for the three days after chemo? They don't help one bit when you are trying to sleep! I hope you get another few hours before getting up, I hope I do too!
I hope everyone else managed a good sleep! Gragon are you sleeping better now the house is quieter!!
yes it was 4ish and yes I went back to sleep again afterwards. So I had three short sleeps last night and I will nap again today. I can sleep anywhere. Including in the middle of a sentence as it turns out. Just ask my neighbour.
I don’t have blackout curtains in my bedroom but my curtains themselves are quite thick and heavy. I think we naturally are more wakeful in the summer. Ask anyone who’s been up to the north of Sweden and they’ll tell you people sleep very little during the summer in the land of the midnight sun.
The steroids are just for the three days around the chemotherapy. They do make sleep very difficult. I’ve been on them continuously since April so I know all about it. In fact it’s a treat now just to have them for three days in the weeks I have the chemotherapy. Ok that’s three weeks a month but it’s progress.
It sounds a bit Dixon of Dock Green but I think his saying was "Evening All". Having only slept for about 2 1/2 hours the night before last, I slept from 10.30pm to 5am last night. I even managed to stay in bed and idle away a couple of hours until 7am in that not quite ready to get up dreamy state, the best night I have had in ages. It was cooler which helped and I was exhausted which certainly helped. We have quite dark curtains but I find that it only takes one chink of light to break the darkness. When we went to stay in Crete the house had solid wood shutters and when you closed them it was total darkness. Arriving tired after travelling we would stay up late chatting and then go to bed closing the shutters. We would get up with no idea what time it was and open the shutters to find out that it was 10 or 11 am and hot and sunny outside.
It is much quieter in the house now but that is simply because the house is not really set up for four people and there is so much more space with only the three of us. Mel and Noah are only working until the start of the summer holidays at which point it will get much easier again. Once school finishes as a fifteen year old Noah is unlikely to emerge from his bedroom on a morning unless we wake him up. I have fond memories of my teenage years when I could happily sleep until 3pm regardless of how early I went to bed the night before.
Sorry to hear about your cooker Annette /anndanv. I know that you enjoy your cooking and baking. Have you thought about getting a combination microwave / convection oven? They just plug in so don't need an electrician but can cook food conventionally if you want them to. They are not as big as a normal oven but can be quite large. The one we have will easily take a large chicken to roast.
It's lovely to see a post from you that isn't so dramatic daloni. Hopefully the three days of steroids will be the worst of it.
love Gragon x
are you calling me a drama queen? I had a good night last night too. I slept from 22.30 to 3.00 when I woke briefly to ignore the dog. Then again to 05.30 when I came down to let the dog out and then from 06.30 to 09.30. I’m still in my pjs now and think I’ll go back to sleep again.
Not at all, you compare favourably with most royalty nowadays and I think I would prefer to think of you being involved in a drama rather than a crisis. I would hope to think that I could cope half as well as you given what you have been through in the recent past. Although I'm sure that you would have the skills to be an excellent drama queen should you chose to take that route at any time.
I'm also heading back to bed now. I'm getting a headache and that is normally my hint that I need more sleep. I slept from 12.30 to 4am this morning. Got back to sleep about 5am. Woke again at 6 and dozed until 7am when I got up. I still need a couple of hours to top me up.
Have a good rest.
Ah yes, the tired headache. I get those too, Gragon. It is such a great feeling to close my eyes on a tired headache and wake up an hour or two later to find it gone.
I am finding no matter how much I sleep I’m not refreshed by it but that’s fatigue for you. My big sister is here with me this weekend and she’s doing a grand job of stopping me from overdoing it.
Good Morning All,
i also think that the long days of sunshine Make me wake up at first light snd tend to keep me awake till it is dark. I track my sleep with an app and find my sleep cycle in the summer to start sleep around 1am and wake at 6 and every other day I have a much shorter sleep. last night was a long sleep so i did not join the night shift. I woke at 6am to a overcast sky.
Daloni , it was good to hear your chemo of the 12th was uneventful. mine starts on Monday. Hugs to all the Gang.
My capacity for recall is very poor so although I would wish to be the person who would look up time differences and post my good wishes to you first thing on Monday morning, I know myself too well. I am in fact the person who would wake up on Tuesday, slap a hand to my forehead having realised I’ve forgotten. So I will take this window to offer you my wishes for your chemo to pass with ease and hope for success with minimal side effects. Much love to you, Millie dearest
Good morning Gang, Well my new meds seemed to be doing really well until last night. In saying that I don't have the extreme pain of the last while, just my leg jumping when I'm trying to settle down. It sort of feels like a muscle spasm in my thigh, then my leg jumps, I can cope with it, I'm used to it. I wondered if anyone else who has tried these patches found that the day after they applied a new one, it took a while to settle. That was only my 2nd patch, so early days. Gragon I hope you managed to get back to sleep yesterday morning and your headache was gone when you wakened. Regarding my oven, I am waiting for the number of a local electrician just now, as he may be willing to connect a new one up, once we get it. The one I like is out of stock in quite a few places so if he gets back to me, I will look again to see if I like any they do have on. In the meantime we are doing fine with the microwave (1,000 w) and the grill, but thanks for your suggestion. If we can't get something sorted soon we may well go down that route!
MCLkid Hi Millie, I know exactly what you mean about the light in the sky in summer. Here there is still a bit of light, if it has been a sunny day, until about 10.40pm, on cloudy days it is a bit earlier, maybe 10.15pm. Then the sun rises at about 4.10am. The gap will get even smaller until 21st of this month when it is the longest day of daylight. Am I right in thinking California is about 8hours behind us? I'm not sure, so like daloni I will wish you good luck for your chemo on Monday and hope it all goes well. I hope you do not have far to travel to the hospital or centre where you have it done!
I will try to get some sleep now, I've been up and down all nght and now have the headache you spoke of, I hadn't thought about it being tiredness but it sounds very logical!
Well good morning all,
I'm afraid that I might have to resign from the night shift. I went back to bed yesterday but didn't manage to get to sleep although just lying there and resting made me feel a bit better.
I then stayed up until about 12.30am before going to bed. I was asleep as soon as my head hit the pillow and didn't wake up until 7.30 am. I took off my sleep apnoea mask and laid back down for a couple of minutes and woke up at 9.50am! This is the longest I have slept since I was knocked out when they increased my painkillers. I feel really good now, better than I have in a long time. It might be a one off but I shall enjoy it whilst I can.
I'm on the buprenorphine patches anndanv /Annette but at the bottom end of the scale. I started on 5 micrograms per hour but that wasn't enough so they increased it to 10 micrograms an hour. It was at that point that I spent the next week high either sleeping or siting staring into space. The ones I am on are supposed to last a week but I have twice forgotten to replace them on the day but by the next day I certainly notice the difference which reminds me to change it. I can't say that I have noticed anything when I put the new one on but I will keep an eye out from now on. The problem I have is one that I hope you don't in that I am one of those very hairy men. I have hair everywhere except the bald patch in top of my head and I refuse to put the patches there so I have to shave the place where I want to put the patch. As the instructions say to avoid putting it in the same place for three weeks I have to have a four week cycle of where to put them. I also need to remember to shave that patch at least a few hours before to allow it to fully dry and settle down before I apply the patch.
It is dry and sunny here today so I hope to get out and do a bit of weeding. I also hope to persuade my 15 year old son that cutting the grass is a better idea than playing video games but hey, who knows, maybe miracles do happen!
it sounds like you are in need of a full body bikini wax job! It only hurts when you remove the wax with the hairs.
its good to heat that you are sleeping again. be happy, be kind and be well.
Gragon, sorry but i had to laugh out loud when i did read you post, i can see you in my mind now looking like a roadmap....sorry but thanks for making my day!!!!
And i'm so glad you can sleep again, enjoy it!!
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